Hello Everyone, , especially to my friends who have supported me through thick and thin (mainly thin!! ) these many months past , , I hope you are all as well as can be. I would love to be able to report I'm jumping through hoops but not quite as yet.
Those of you that know me will know I'm not given to moaning a bucket about my lot following my BMT but . . . . here goes LOL . . I am a tad frustrated that my progress to recovery has been over shadowed by my experience with Graft Versus Host Disease - GVHD. Especially how it has affected my eyesight which nothing presently seems to be able to correct. I guess I have about 50-60% vision and everything is blurred. This I find the most frustrating aspect.
I am gaining strength albeit slowly and my mobility is gradually improving. So that's positive. My learnéd Consultant has put me back on an old friend which I was taking prior to Transplant , that being Ruxolitinib. He is optimistic that it may help alleviate my GVHD in time. He was concerned it may initially lower my already low Platelets but in fact they have come up from 50 ish to just over 100 in a couple of weeks. Most of my counts are quite reasonable given that I'm on a few drugs which are quite toxic to bone marrow which demonstrates that my underlying system must be fairly robust. Ive started on a low dose to see how it goes and am hopeful that I can get fully off steroids in the next couple of months. This in turn ought to bring my blood sugar back to near normal levels so I can reduce my insulin dependence or abandon it completely. Bring on the cakes. . . 😜.
I will have to get a haircut soon as my lovely wife says I look like Wurzel Gummage with my Tattie head on. Very apt I'd say but I'm waiting for warmer weather to bless us.
Take care and best wishes to you all. Chris x