Monday MRI

[KLCTJC]

just wanted some good vibes from all my MPN warriors out there. Monday I have a MRI to see what is happening with my MS. Prayers Besremi has helped and I am not potentially facing another medication. I have pretty much made my mind up I don’t want to take anything else for my MS right now. Want to see if Besremi will eventually work. I have no symptoms and feel great! Besremi is just so close to beta interferon and my labs just got controlled. Just praying for no change and I can maybe breathe for awhile! Thanks for all the support!

[saltmarsh]

You will be in my thoughts going forward. I'm sure many of us share the concern over our treatment plans losing their efficacy - I certainly am. I can make myself ill worrying even though I know it accomplishes nothing. So please know we are wishing you good results and progress on your journey. Sending you much love and support.

[KLCTJC in reply to saltmarsh]

Thank you. I have seen two of my patients this week that have MS and I took it as a sign. They all said they thought my decision was a good one. One of them brought me a Tshirt to wear! I am so blessed to have so much support! I was so looking forward to getting this over with! But in typical Texas weather I think Mother Nature is going to have other plans. Monday and Tuesday are calling for snow and ice! So, I think I am going to have to reschedule! I am going to probably push for April that will make it a year from my last one. I am going to take this as a sign from God.🙂. I am going to have a good outlook on this issue and see it as giving Besremi 3 more months to works it magic! Thank you, I wish you love and support too.

[GardNerd]

Prayers and good vibes coming your way!!! All the best to you - no more medications and continuing to feel great!

[KLCTJC in reply to GardNerd]

thank you!!! Texas sent a curve ball with this weather, looks like I will have to reschedule. Taking it as a good sign from God that we can give it a little longer to work!!!

[Spanelmad]

If I'm reading this right your saying your blood works looking good? You say no symptoms YEs!!! So sending positive thoughts across the pond for april.Here's hoping the weather doesn't get to.bad for you.

[KLCTJC in reply to Spanelmad]

Thank you!!! My blood last time was looking good. And sending positive thoughts and prayers back to you from deep in the heart of Texas. I didn’t know the weather report til after my post this morning.

[Spanelmad in reply to KLCTJC]

Just seen the forecast for here next week and looks like we'll be gritting the white stuff too.

[hunter5582]

Thought and prayers for success headed your way. 🙏

[KLCTJC in reply to hunter5582]

Thanks!

[mhos61]

Whenever you have your MRI I wish you the best of luck. X

[KLCTJC in reply to mhos61]

Thank you! Texas just sent us a typical weather curve ball!

[ETinNYC]

Hoping the imaging study goes well and that you get the results you're hoping for. Along with that, it's great that you're feeling well - hopefully that's an indication of your imaging results. Best of luck from NYC!

[KLCTJC in reply to ETinNYC]

Thank you! I love it is postponed but hate it too! But Texas weather is so unpredictable. I really appreciate the support. All of us need to stick together through this journey, especially us young moms. I am about to be 42 as well with a little girl. We are all warriors in this journey of life! I appreciate the support from the Big Apple! Feel bad as soon as I posted this I saw the weather called for wintery mixed and hard freeze! And both the imaging place and neurologist are over 30-40 mins from where I live. So April it is! I will post again! Thanks for all the support. It is so appreciated!

[russkatt in reply to KLCTJC]

You have the power of the people and prayer with you my dear.

[Minify]

Wishing you good luck !

[Carol0925]

🙏🤞❤️ from across the pond. X

[dbus1417]

good luck! 🥶

[JAB6]

Wishing you the very best!

[RazB]

sending positive thoughts and wishes from South Devon, England. 🙏🌈🤞

[lizzziep]

Sending prayers and good wishes from Yorkshire, England 🙏🏻❤️🙏🏻

[azaelea]

Thoughts and prayers are with you for good results and that all will be well.

[DiveGoddess]

Wishing you positive energy for your MRI. I know the Besremi has helped me, please share your updates. Hugs, Christy

Top of the World Treetops and Blue Sky

[Mishie14]

You are not alone, best wishes to you for no new meds and continued good labs. Please take care and watch out for tricky weather.

[KLCTJC in reply to Mishie14]

Just knowing I am not alone. That means the world. The love and support on this site has helped me. Texas weather is crazy sometimes! But god works in mysterious ways. Thank you. All of these posts help me feel like it is going to be ok. ❤️

[KLCTJC]

Words can’t express how grateful I am for all of y’all! Weather threw me a curve ball! But looking at it as a positive sign. More time for medicine to work! Hugs and love to everyone!!!

[PhysAssist]

Simply this:

Kick butt, take names....

That is all!!

Best,

PA

[KLCTJC in reply to PhysAssist]

Haha!!! I love it!!! Thanks! Will keep y’all posted since now it is postponed

[Inverter]

Hi KLCTJC, can I ask what kind MRI results are you waiting ? Brain and spine ? I m waiting result as well for that. Best of luck for us !!!

[KLCTJC in reply to Inverter]

Over a year ago I found out I also have MS. I am a weirdo! Was able to find an old article about some people in the Netherlands they postulated that their MPN and the MS were related somehow. And my guess is they are but it is so rare unlikely anyone would ever look into it. Dr V at MD Anderson said in his career he had never seen it. But the fact that both are treated with interferon can’t be a coincidence. But gratefully I don’t have really any symptoms of either PV or MS. Now as my husband would say “I am a head case” about everything. I worry and stress! But I really feel well. And like many others on here know I have made up my mind no matter the MRI results I am not adding a medication right now. But still praying for no change! Now I will have it in April due to this weather!

[Inverter in reply to KLCTJC]

Is very good you feel well , I’m sure your mri gonna looks good 😊

[KLCTJC in reply to Inverter]

Thanks! Will see in April. But I will likely post again before and after. The support on this site helps.

[marlenablue]

Sending hugs from New Hampshire!

[KLCTJC in reply to marlenablue]

Aww….thanks! Texas threw a curve ball today with this weather! So postponed til April! Will likely post again. Need all the good vibes I can get!