The Next Frontier in Myelofibrosis Management- E... - MPN Voice

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The Next Frontier in Myelofibrosis Management- Eric Tam 3-8-23

PhysAssist profile image
8 Replies

This is from a continuing medical education activity that I completed today:

I hope you find some useful, or at least hope-inspiring information in here...

scientiacme.org/pdfs/PDF480...

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PhysAssist
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8 Replies
hunter5582 profile image
hunter5582

There is a lot in this training to absorb. It is certainly hopeful to see that so much is happening.

PhysAssist profile image
PhysAssist in reply tohunter5582

Hi Hunter5582,

Yes, it is a very deep dive.

It is not at all written for the average lay person.

So, for most of the folks here, I posted it as mostly a reminder not to give up hope because many new areas of therapy are constantly being explored,.

But for those of us with either more training or interest learning , it's also worth reading to learn more, especially since none of us knows when or if our own disease's progression to MF will occur.

Read in the best health possible.

Best,

PA

Heidi-W profile image
Heidi-W

Thanks for sharing this. Very useful to see the newer options being developed especially once the Rux stops working

PhysAssist profile image
PhysAssist in reply toHeidi-W

De nada, I'm always looking forward to the next thing because we never know when or if we'll need it. Rusfertide is another medication I'm very interested in, as so far, it looks very promising.

Best,

PA

C_Anne_Orange profile image
C_Anne_Orange

Thank you for posting! While a lot of it was beyond me, I picked up some information and did find it encouraging that there are so many new treatment possibilities! I would never find these things on my own, so I really appreciate your sharing!

PhysAssist profile image
PhysAssist in reply toC_Anne_Orange

Hi C_Anne_Orange,

You're so welcome!

It was definitely a very deep dive.

I think it's really important for all of us to know that there are new treatments on the horizon, even if they may be a long way away from becoming approved for our use.

Best,

PA

Artjoy profile image
Artjoy in reply toPhysAssist

Thank you SO much for this. I took many notes and as I just came off the Navitoclax trial and am about to try Pacritnib (jumping from tree to tree wit advanced MF), I spend a lot of time researching new drugs, and this summary was incredibly helpful. It will help me a lot in discussing possibilities with my oncologist. Knowing the primary and secondary endpoints of trials is also very important to me. Thanks again for sharing this.

PhysAssist profile image
PhysAssist in reply toArtjoy

Hi Artjoy,

You're so welcome!

I'm just glad to be able to help in some small way.

Best wishes for a totally excellent outcome!

PA

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