Idiopathic erythrocytosis

[Aime]

Hi Guys, apologies I couldn’t find the post regarding the differences in the terms idiopathic erythrocytosis, Polycythaemia and PV. Maz has received an answer from Prof Harrison to say: Polycythaemia just means too much blood, PV is the actual MPN and idiopathic erythrocytosis means too many red blood cells, cause unknown.

I hope that helps with the query. I just wonder in time if research will find yet another gene mutation which will provide a reason for the idiopathic erythrocytosis diagnosis. I hope so.

Hope you are all as well as you can be. Kindest regards Aime xx😻😻

[Sand-Dancer]

Thank you Aime. This is very interesting. Lesley x

[bordeauxgirl]

Thanks from everyone like me who gets mixed up with researching our problem Aime. best wishes x

[Vigiindia]

True!am also in between polycythemia and Idiopathic erythrocytosis.. may B another one version for undiagnosed people

[EleanorPV]

As you know the wonderful world of genome research is a fast move research field. Far too complicated for me haha.

[leapi]

hi Aimie sorry to hear about ur new diagnoses are u still having venesection or are they treating it differently thank u so much for all the kind words and advice u gave me when I had my hip replacyment

[Aime in reply to leapi]

Hi, yes treatment still the same - regular blood tests and venesection as necessary. Hope you are keeping well . Thank you and kindest regards Aime xx 😻😻