I have post ET Myelofibrosis, low risk and on no medication as yet, have just started having night sweats and am wondering if this is a problem others have had?
Night Sweats : I have post ET Myelofibrosis, low... - MPN Voice
Night Sweats
Yes it was definitely a symptom. Not especially uncomfortable but my pillow was often soaking wet in the morning.
Thank you for replying, finding it difficult to get a good nights sleep. Hope it improves when the weather is cooler.
Yes, this was one of my symptoms before I was diagnosed with MF in January 2021, along with joint pain in hands and feet. It has improved since taking Pegasys, hope it improves for you .
Thank you for your reply, so grateful for all the help and advice from you all.
Hey Flog, sorry to read that you are having sweating issues.
Two years after my MF diagnosis, I experienced a couple of months of sweating at night. I would wake during the night with my bed wet with sweat. I don't know what triggered it or why it stopped.
In the same year I also had a couple of months of itching badly at night. Particularly my legs and torso.
Blasts had started appearing in my blood count reports so I was quite concerned. I later learned that a low level of blasts is quite common for MF patients.
The really bad sweating and itching did not return, thankfully.
For the next two decades I had some itching after showering and the occasional damp pillow around my neck. All very manageable. I count myself as lucky.
It will be interesting to read what other peoples experiences have been with sweating.
I hope things settle down for you too.
Best wishes, Simon
Thank you for replying so encouraging to read your post, it seems it is a common problem with MF.
Hi! I had night sweats and itching as 2 of my pre diagnosis symptoms of ET. Since starting treatment- Baby aspirin and Hydrea- those symptoms have just about gone. Hope you find a solution soon.
Hi flog. I have PMF and have been on watch and wait for 18 months. Night sweats started over 3 years ago and were one of the initial symptoms which eventually led to the diagnosis of PMF. I have them every night and find it difficult to get back to sleep. My remedies are changing pyjamas and having 2 pillows, as trying to get back to sleep on a wet pillow is hard. They are definitely worse in the hot weather. Good luck!
Thank you for replying, seems we have a very common problem.
Hello, I sympathise with the sweats (I also get them but even worse during the day). I purchased a fine mist water spray bottle & a good quality fan; lie on the bed spray all over & turn fan on - bliss!! ( not so simple when sitting in a restaurant 🥴). Good luck 🙏
I am high risk MF now but just started getting night sweats last year. Sometimes it’s just my pillow but other times my sheets are soaked top and bottom. Last night I developed a fever so my night sweats were especially bad. I’ve been taking Jakafi since the beginning of June which is supposed to help, but it’s not really working.
Jakafi helped me with several things but not the night sweats I'm afraid.
Any news on your transplant?
Yes, I’m going back to Boston at the end of August to discuss it again with the transplant specialist. It seems like I started progressing more rapidly this summer. I now I have an enlarged spleen and liver and my hemoglobin and platelets have started dropping. My white blood cell count was always normal but a couple weeks ago it was at 23. I have a feeling the transplant is coming sooner than later.
Hi. Yes, i was getting night sweats 2 years prior to diagnosis, i though it was the menopause and had no idea i had blood cancer. Still get them but but not as much now i am on Interferon. I just get really hot at night and have had a 2 tog duvet on the bed since March!
Thank you for your reply, so many helpful people on this site.
Yes, I feel like a human radiator that is set to high!
My sweats seem to be in a morning! Not too many at night, but when I get up they start then, only last a short while though.
Thankyou it is definitely a very common problem.