Night sweats : Hi I’m on Hydrea with ET does... - MPN Voice

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Night sweats

Windy51 profile image
15 Replies

Hi I’m on Hydrea with ET does anyone get night sweats

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Windy51 profile image
Windy51
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15 Replies
BonnieJ profile image
BonnieJ

Hi Windy51,

I take Hydroxyurea 500 mg daily and have night sweats too. Not every night though.

The other side effects I have had since starting on it 4 1/2 yrs. ago are thinning of my hair and it seems to have weakened my teeth as several of my teeth have cracked or broken since I started on it.

GarciaB profile image
GarciaB in reply toBonnieJ

I have similar experience. My doctors say it’s better than the alternative

Nickthedevil profile image
Nickthedevil

Yes I have night sweats every night on Hydroxy

Ovingite profile image
Ovingite

Hi Windy51

Night sweats is a very common symptom of ET, with or without hydrea. As Bonnie says it's not every night. I tend to get it for several nights / weeks in a row and then it subsides, sometimes for months, before it comes back again. I have tried to find a link between ocurances and diet, exercise, hydration, alcohol etc but I found no obvious cause.

Basically, it's inconvenient but nothing to be concerned about

Stay safe

John

Windy51 profile image
Windy51 in reply toOvingite

Thanks everyone I was a bit concerned

GarciaB profile image
GarciaB

I have night sweats, but not everynight. I try to stay heavily hydrated. It helps

ciye profile image
ciye

I thought I was enduring the longest ever menopause turns out it was just the ET. It's most nights .

Chicagopv profile image
Chicagopv

I have night sweats and hot flashes (flushes, as the Brits call them) from PV itself. Been going on way way past menopause. Caffeine and alcohol make them worse, as well as spicy food and exercise. I just stop what I'm doing and let them pass.

CalrType1 profile image
CalrType1

Yes. Every night but severity varies. I had sweats like this a couple years before my diagnosis.

Pte82 profile image
Pte82

Try liposomal curcumin and liposomal vitamin C for your itching and night sweats . Liposomal C will help building collagen to help prevent leg ulcers and bruising. Hyrea causes magnesium loss that effects so many body processes. It's a co-factor needed to change thiamine to it's active form. Search on "krispin magnesium" for magnesium info. Also look up "nothing boring about boron" It helps increase magnesium absorption and retension. Alway consult with your healh care professional before using any supplements.

Jawas profile image
Jawas

Hi Windy51

I am sorry to hear you are having problems.

What works for me is an anti inflammatory diet and not eating much after 5pm

Some info here

pvreporter.com/wp-content/u...

Good luck

Jawas

ramnik profile image
ramnik

I was diagnosed with PV in sept 2018. am 54 years old. I am on hydrea since 2018. since 1 year the dose is 1000 mg daily. But i dont have any side effects to speak of. hope it works out for you too.

ToriaFlo profile image
ToriaFlo

Magnesium at night has helped my night sweats also has a calming effect on me.

Elizka profile image
Elizka

I have a Chilli Pad. Game changers for sleeping well..and not more night sweats.

WileyFrench profile image
WileyFrench

Hi Windy51 - I was diagnosed with ET in 2017 and have been on hydroxyurea (500 mg one day alternating with 1000 mg the next) since 2018. I had night sweats before diagnosis and have them now, but not every night. They seem to go in waves; will happen every night for a while and then not for a while. I can’t seem to find anything that correlated with an onset so I just turn on the overhead ceiling fan if I wake up in a sweat and let the breeze waft over me. Works pretty nicely - although I can be freezing when I wake up in the morning!

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