Another attempt : birmingham.ac.uk/news/2023/... - MPN Voice

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Another attempt

JP1952 profile image
12 Replies

birmingham.ac.uk/news/2023/...

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JP1952 profile image
JP1952
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12 Replies
Turfbeg profile image
Turfbeg

Many thanks for posting this article!

john0084 profile image
john0084

Really good news for all pv patients in the UK.

LittleLuna profile image
LittleLuna

thank you for sharing 😀

Manouche profile image
Manouche

… »For some time we have wanted to be able to understand the long-term benefits of a drug such as ruxolitinib for patients with PV. This study shows several important messages about this therapy which will hopefully shortly be available for UK patients ».

EPguy profile image
EPguy

This is fresh stuff. I recently posted some thoughts on the trial.

This part is new: "For the first time ever using samples from the study the researchers showed that both controlling the blood count and reducing mutated JAK2 by 50% led to fewer disease related events" For IFN it's been implicit but has never been an endpoint of a trial.

healthunlocked.com/mpnvoice...

They refer to Rux as "new". It's been in use for over 10 years, but first for MF. What's new is all the data for PV just coming out.

Anouchka profile image
Anouchka in reply to EPguy

that’s interesting! I consider myself lucky it’s available here in France having been diagnosed with PV last year….

ciye profile image
ciye

That is good news.

Maisie10 profile image
Maisie10

many thanks for sharing. Good news. Hopefully soon available in the uk. Take care

STK52 profile image
STK52

Thanks for sharing. Is Rux available for PV patients as second or third line option in the UK? Does anyone know?

william-Indo profile image
william-Indo

Thank you for the post

MAP44 profile image
MAP44

More great studies to benefit all of us.

🙂🎉🥂

T1960 profile image
T1960

A great article, very positive for all of us with PV. Question - how are we chosen for a trial? - anybody.

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