Video of the MPN Voice ‘Virtual’ Patients’ Forum – London Held on Tuesday 2nd February 2021

[Mazcd]

The video of the forum is now available to view on the MPN Voice YouTube channel. youtube.com/channel/UC-S_Ic...

youtu.be/1ZK4SYpT4uc(Not working as expected?)

This MPN Voice ‘virtual’ patients’ forum hosted by the Guy’s and St Thomas’ Hospital team features: Nona Baker, Co-Chair MPN Voice, who talks about MPN Voice 'who we are and what we do'. Updates from ASH (American Society of Hematology), and origins of MPN presented by Prof Claire Harrison, Guy’s & St Thomas’ Hospital.

New Therapies and the immune system and ‘hot off the press’ MPN immune responses to COVID-19 presented by Dr Donal McLornan, Guy’s & St Thomas’ Hospital.

A patient talk – Caroline Thomas shared her experiences of ET and her role within advocacy and MPN Voice.

A panel Q&A session where the medical team answered questions from the audience.

The breakout groups are not included in this video for reasons of confidentiality and privacy.

We would like to thank all the medical team at Guy’s & St Thomas’ Hospital who took part in this forum, we are very grateful to them all for giving their time to support the MPN community in this way during these very challenging times. We are also very grateful to our two wonderful patient speakers for sharing their MPN stories. And a huge thank you to the Guy’s & St Thomas’ Commercial Service Directorate team for all their help and assistance in producing this forum, we are very grateful for everything, thank you Danni, Tam, Drew and Dean.

[lynda1ann]

Thanks Maz xx

[Dovme]

Thanks very interesting updates

[Avamia94]

Thank you

[MPNBlog]

Thanks for making this available Maz, especially so quickly. Much appreciated.

[Jrc2019]

Hi Maz I thought you might be able to share some light on the subject I have Polycythaemia rubra Vera just on aspirin at the moment platelets around 1000 all the time. I have been told that I am class 6 for the vaccine so will be one of the last to have it can anyone tell me if this is correct .

[Mazcd Partner MPNVoice in reply to Jrc2019]

Hi Jrc2019, I put a post up about this, you can read it here, hopefully this will help. Maz

healthunlocked.com/mpnvoice...