Finally got Covid: So it’s 3:00 in the morning... - MPN Voice

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Finally got Covid

Cja1956 profile image
33 Replies

So it’s 3:00 in the morning here. I can’t sleep because my chest is so congested. I’ve had fever 4 nights in a row. I’m also taking a lot of medication which is making me nauseous because I have no appetite.

Just wanted to vent. This is my first time getting Covid but I know others have experienced it, as well. I’m also vaccinated 4 times.

Take care.

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Cja1956 profile image
Cja1956
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33 Replies
Cat1001954 profile image
Cat1001954

oh you poor thing wish you better soon

socrates_8 profile image
socrates_8

Hey Cindy... :-)

I am really sorry to learn that you are battling w/ CV–19, & hope that you repair fast!

As yet, I too have managed to avoid falling to Covid, & I am still practising all the usual safety protocols... I simply just do not ever want anything else other than dealing w/ my MPN...

It's more than enough for me these days...

Speedy recovery Cja... :-)

Steve

ox

Cja1956 profile image
Cja1956 in reply to socrates_8

Thank you, Steve. I know I’ve gotten more lax and now I’m paying for it.

DJK12 profile image
DJK12

What very bad luck - I know four friends with it at athe moment. It just won't go away. I remember you had pneumonia recently so have they got you on anti virals and antibiotics? All no doubt with their own side effects but I hope you start to improve soon. Best wishes Diana

Cja1956 profile image
Cja1956 in reply to DJK12

Thank you, DJK. I am feeling a little better. It’s like having a bad flu. I was so afraid to get Covid after having pneumonia, but honestly, the pneumonia was worse. Thank you for your kind words.

DJK12 profile image
DJK12 in reply to Cja1956

Very glad things are improving and you got the anti virals.

Poppy6060 profile image
Poppy6060

Hi hope you will feel better soon look after yourself and chat to a doctor or nurse there is such a lot of covid around again I am trying to get out and about but do take more care than most best wishes Poppy

Cja1956 profile image
Cja1956 in reply to Poppy6060

Thank you, Poppy. I’m pretty sure my boyfriend gave it to me. We went to an event and it got crowded. I left after an hour but he stayed. He got sick 3 days later and I followed 3 days after him.

Otterfield profile image
Otterfield

No helpful advice I'm afraid but get well soon!

Cja1956 profile image
Cja1956 in reply to Otterfield

Thank you, Jennie. How are you doing?

Hopetohelp profile image
Hopetohelp

Wishing you lots of goodwill to get better soon x

Mostew profile image
Mostew

hope symptoms don't last long .

Lemon123 profile image
Lemon123

Sending lots of get well soon wishes, sorry to hear you've got Covid19.

DC1916 profile image
DC1916

I hope you get better soon.

katiewalsh profile image
katiewalsh

sending healing thoughts & hopes it leaves soon. Get medical care asap if your oxygen levels fall too low. Katie

JOY2THEWORLD49 profile image
JOY2THEWORLD49

hi

We afs are susseptible of getting viruses.

What meds are you on?

I read that we AFs cant have the ant virus med.

Sounds like you should be under care and in hospital.

Take care, JOY 73 (NZ)

Cja1956 profile image
Cja1956 in reply to JOY2THEWORLD49

We read so many things online, it’s hard to know what is accurate. I see a very knowledgeable functional medicine physician who I trust and she’s the one that prescribed the antiviral, which seem to be working. It’s called molnupiravir. It’s pretty new on the market. She said the popular one is Paxlovid, but she said that it interfered with my other medication.

By the way, what does afs stand for?

I appreciate your concern.

JOY2THEWORLD49 profile image
JOY2THEWORLD49 in reply to Cja1956

Hi

She is quite right.

We afs Atrial Fibrillation sufferers cant have the NZ one she sights.

Did you have the course of 4 jabs COVID?

I still remain double masked in places of community gathering and shops.

Never had COVID but I have been a CONTACT.

As your Dr has spotted a non go anti-viral she is a keeper.

But I've never known a person suffering for so long. My contact had a very sore throat 1 day then a bad night unable to get his breath then OK next day and continued to improve.

Cheers JOY

EPguy profile image
EPguy in reply to Cja1956

Molnupiravir has actually been available for a while. But the reports from early this year pointed to its being signif less effective than Pax, by some no better than placebo. In more recent reports with more data it's looking much better. So your Dr is keeping up with the latest. And this is good news for those who's meds preclude Pax, esp because some of the latest variants may affect how well the other options work (antibody infusions).

Cja1956 profile image
Cja1956 in reply to EPguy

It’s funny you say that because last summer she said if I get Covid, I should call her to give me Paxlovid . But when I really did get Covid a few days ago, she changed her mind and gave me the new one. It’s 8 pills/day, so it’s kind of a lot.

EPguy profile image
EPguy in reply to Cja1956

I think there was some early bias against it because it works by "by fostering error accumulation (in the virus genome) in a process referred to as ‘error catastrophe"

nature.com/articles/s41594-...

Sounds bad to lay people, esp us with our own errors to deal with, but clearly it's working well and we can trust it doesn't affect our genome, only the bug's.

Pax is looking more problematic with its many med interactions.

8 pills is a lot. Any side effects?

Cja1956 profile image
Cja1956 in reply to EPguy

Not really. I’m tolerating it well. My boyfriend started his a couple days earlier and also seems to be tolerating it.

Thanks for all your information. It’s been most helpful.

QA1982 profile image
QA1982

i’m on day 6 of my first bout of Covid like you felt terrible for the first 4 days . Decided to take the antivirals and although still faintly positive feeling slightly better and on the road to recovery I hope. Hope you feel better soon.

Cja1956 profile image
Cja1956 in reply to QA1982

Glad you’re feeling a little better. I’m taking the newest antiviral called molnupirivir but didn’t start until Thursday. The good news is that last night was the first time in 5 days I didn’t have fever. I did however lose my voice completely and still very weak. Even so, I feel like I’ve turned a corner.

SuET2017 profile image
SuET2017

I also got after 4 vaccines. I did get the anti-viral infusion within 48 hours of testing positive. I had very very mild symptoms.

Hope you feel better soon

azaelea profile image
azaelea

So sorry to hear you’ve succumbed to it after escaping. Sending best wishes for a quick recovery hoping you’re now over the worst. xx Fran

william-Indo profile image
william-Indo

sorry to hear that.

wish you speedy

HazeBlue profile image
HazeBlue

get well soon .were you offered pills or infusion to stop it getting serious?

Cja1956 profile image
Cja1956 in reply to HazeBlue

Yes, I called my doctor immediately after my test came back positive and she prescribed a new antiviral called molnupiravir. I just started it Thursday night.

jmctrek profile image
jmctrek

Hope you are on the trajectory of feeling better each day. Like you, I felt a lot of congestion in the chest when I tested positive for covid in September. It got better after a few days but the congestion (albeit milder) returned with body aches after a week. My body felt relatively normal after 3 weeks, which took longer than anticipated. I didn’t opt for any covid treatments given that I didn’t fit the criteria and was still able to walk 3mi throughout the first week.

Wanted to share my experience to let you know that the symptoms can wax and wane, and even though I am only at ET on the MPN spectrum at the moment, my body took more time to clear the virus and the inflammatory response to it. Hopefully the antiviral treatment you received will help you recover sooner to get back to your baseline.

Cja1956 profile image
Cja1956

Thank you for sharing. I’m already feeling a little better but I will keep in mind what you said. I’m still very lethargic with bad laryngitis, but no fever, so that’s good. Thank you for your good wishes.

redumbrella profile image
redumbrella

Don't beat yourself up over i as time goes on in becomes increasingly difficult to avoid getting Covid. Just be happy you are vaccinated and so should not be too ill. Hope that you are feeling better soon. Garry

Cja1956 profile image
Cja1956 in reply to redumbrella

Thank you , Garry.

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