I think I'm on the lowest dose of hydroxy now (500mg daily) as my platelets have been normal for over 6 months. My biggest whinge are too my all too frequent headaches (usually the nighttime /aka hypnic variety) and dreadful bloating + water weight gain. Calorie resrictive diets are ineffective.
I'm seeing my haemo in 2 weeks time and I'll ask if there is an alternative, though I suspect there is none in Australia.
I've saw a neurologist before the hydroxy regime started, but it's a mystery whether the headaches are related.