I have had PV for 4 years and take Hydroxycarbamide two 500mg daily. Recently posted about sensations in feet and legs and received replies which I was thankful for as some have reported similar symptoms.
Things have moved on since then and after recent blood tests have been told by consultant Haematologist that I have abnormal low protein in blood which maybe caused but he’s not sure by the Hydroxycarbamide.
Have any other people in PV community had the same diagnosis as it giving me a slight feeling of apprehension of what’s ahead for me. I am awaiting a letter for face to face appointment to discuss the abnormality and what’s to be done but given the NHS Scotland backlog as in other parts of UK that might be weeks away.
Any feedback will be greatly appreciated.
Thank you