In Spain I saw a very experienced haematologist: my treatment was 6-monthly phlebotomy, 300 or 400ml, and Aspirin. I was diagnosed with PV in 2010, had more frequent phlebotomy initially to reduce the haematocrit, and my treatment in Spain controlled this well, with negligible side-effects. For the past twelve months I have been treated in France as we are now resident here, but I have some concerns: treatment is Hydrea 2x daily which has reduced my leucocyte and platelet counts well, but failed to control the haematocrit. My specialist is a rheumatologist who also deals with blood diseases as the local hospital does not have a haematology department. My GP will not refer me to Toulouse which is the nearest with haematology specialists, but has confirmed with them that my treatment is appropriate. Apparently, phlebotomy is not done here for PV. Is this OK? I continue to take Aspirin. I am keeping well.
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