Hello All,
I am a recent addition to this site, having been diagnosed earlier this year. I live in Tasmania Australia, and there are few on our island with this rare disorder. Reading through your posts and the patient and thoughtful replies of others got me wondering whether there is a chart or we could make one or put together a document about symptoms and what others have found useful, helpful and how they have perhaps even solved the problem. Anyone interested? I do feel this could be really helpful as we travel this journey and others join us. Meanwhile I wish you all well, stay safe. For anyone still wondering about getting vaccinated, I have had my first Pfizer shot and there was no issue. I was anxious about it. I do understand the second may produce some symptoms, so I will keep you posted.
All the best, here's a photo of our beautiful island at the other end of the world. This is Table Cape where tulips are grown at the foot of a lighthouse. Can you spot the lighthouse? I hope it's peaceful landscape diverts you for a minute and makes you feel good.
Newly diagnosed with PV
PV and hyperbaric chamber (HBOT)??
Taking Plavix (generic clopidogrel) for PV
Lack of Knowledge from the Haematologists.
