Just finished the Cancer52 launch. Many charities were invited who deal with lesser known cancers so the questions in Chat were flying in fast and furious. I know my original question was second question in and it was “What will the government be doing for all the people with any form of blood cancer who are getting negative results for antibodies against Covid”. I waited and waited while other questions were being answered, all very good questions about funding for, and raising awareness of, lesser known cancers. By 3pm I asked the question again. I said I wanted to go back to my support group, MPN Voice, and be able to tell them what is going to happen. By 3.25 my question was still not answered. I knew if I didn’t voice it in this, the best platform to ask, I would kick myself. So I raised my hand to ask to be heard.
My statement/question was “There are are hundreds, probably thousands of people who have had both vaccines but have been tested and shown to have no antibodies. I feel we are the ‘Forgotten’. We have nobody to turn to for answers because nobody wants to refer to us. I lost my mum and Aunty to Covid so I know the horrors of it. I have lived inside 4 walls for 15 months but it’s not just my life that is on hold, I am basically responsible for the lessening of my husbands life to. Who is going to listen to us”
I tell you I was shaking and very close to tears.
My question was responded to by Paul Bristol, MP who asked me to contact him and he would take the message to the NEW, and he emphasised NEW, Secretary of Health. So I am going to pursue this with him.
I was also told on Chat that Blood Cancer UK are looking into the situation and that PROVENT are doing trials of people not getting any antibodies following vaccination.
I hope you will check out the launch that is available online today. Thanks for the support guys
Jill
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