We have the surgery to remove the mass on my mandible scheduled for July 13. Will be done at Johns Hopkins Hospital where my MPN Specialist and NF Specialists are based. I actually have two docs involved, one otolaryngologist and one maxillofacial surgeon involved. It appears that the tumor may be easier to get out than originally anticipated. Should be a pretty straightforward affair. The docs will be careful to protect the mental nerve that is adjacent to the tumor, which is the main risk if this surgery. I do not have much angst about this surgery. After brain and heart surgeries, this should be no big deal.
I did just have a phlebotomy after a year without needing one. My HCT finally crept back up to 44.1 so we went ahead and did it. As usual, no big deal. I will see what the labs look like right before the surgery. I did have to get a COVID swab test (negative). Will get another right before the surgery.
We will be watching how my body reacts after the surgery. Will have a lab about 10 days later. Am anticipating some mild reactive thrombocytosis, but it may have already settled back down by then. Will monitor as needed.
I m looking forward to getting this over with and finding out what the tumor really is. I still think it is an ossifying periosteal neurofibroma, but only time will tell. I am going to have the doc take a picture of it as it is too fascinating to not see it. Would prefer to really see it, but likely not practical. Got to watch most of my heart surgery (catheter ablation) on the monitor since I was conscious. That was really cool to watch.
Next it will be on the the knee surgery. Going to give my body time to heal up before I tackle that one.
Will let you all know how it goes after I am out of surgery. All the best to everyone.