GREAT TALK w/ Dr Catriona Jamieson

[socrates_8]

Post by MPN-MATE Admin » Sat Mar 14, 2020 1:02 pm

Hi guys...

Came across one of the BEST 30 minute MPN discussions I have seen for a while. Catriona, obviously knows her stuff, and I managed to come away with quite a few illuminations as a result to listening... Thank you Andrew...

Anyways, hope you all find it as useful as did I...

Best wishes

Steve

mpn-mate.com/forum/viewtopi...

[bruddery]

Excellent reading - very interesting to hear of other things coming down the line. Thanks for putting up the link. Bruddery

[socrates_8 in reply to bruddery]

Pleasure, it reallywas quite an interesting video, & Catriona is obviously very well-versed on everything MPN...

Steve

[Manouche]

Thanks for sharing Steve. About interferon:

« it's really a patient specific dose, and 45 is the absolutely lowest - not normally therapeutic. »

Well, I’m on Pegasys 45 for 5 months and got a complete haematologic response for 4 months! Once again, everybody is different !

[socrates_8 in reply to Manouche]

Yes, it is a really pertinent point is it not?

There are always so many variables involved with each case of an MPN...

Hence, it is a salient observation that none of us should ever really be diagnosed in generality, in my view...

Best wishes stay healthy & happy...

Steve

[Cja1956]

Thanks, Steve. I just read the entire interview. It was very informative. The research into MPNs is exploding it makes me very hopeful.

Hope you’re doing well.

Cindy

[socrates_8]

Hey there Cindy...

You are most welcome. Please also take very good care of yourself during these most difficult of times... We MPNers are at greater risk than most of the general community, and therefore we need to be more vigilant towards ourselves, and others might not presently really comprehend that message as well as we might like...

Stay happy & healthy

Steve

[Rachelthepotter]

Thanks for posting this, Steve : it’s brilliant. For a moment I almost understood the difference between ferritin and haemoglobin , and why it matters - but it went. However, I can read the script again.

But joking apart, I like the approach of PatientPower and I share their view of the importance of knowledge.

[socrates_8 in reply to Rachelthepotter]

Hi Rachel...

You are most welcome of course...

It is rare indeed to have a medical professional with such a wealth of experience, who also possesses the ability to define it all in 'common-sense English' so that we might all also understand... Catriona is quite brilliant, in my view...

Sharing bona fide MPN information with everyone is what I believe helps us all...

I have absolutely no qualms at all about relaying the messages that others provide, as it is the 'Message' that really matters...

Take care out there Rachel...

Stay happy & healthy

Steve

[Otterfield]

Thanks for sharing this, Steve.

[socrates_8 in reply to Otterfield]

Hey Otterfield...

No problem...

My pleasure...

Best wishes & please stay well in these difficult times...

Steve