Hey guys...
It's been a while coming to fruition, however, as of today mpn-mate.com has now become a reality, and it is a purpose built Australian Patient's Forum website, primarily for Australians, (as we didn't have our own until now...), but also to be a part of a larger Global MPN network of course.
Maz, and MPN Voice have helped out in places, and naturally we are most grateful for all of their support to date.
In Australia, there really is so very little MPN research being conducted, and as most of you will already know – MPNs are next to unheard of by all too many in the medical fraternity, and we would like to help change some of that if possible...
To that end, we have also launched a Gran Fondo Solo cycling event to circumnavigate Australia...
Endeavouring to cycle 20,000kms in Under 200 days...
Please see our Fundraiser & Sponsorship pages to see how all of this will eventually come together...
If it all comes together, we will raise $150k for MPN research through the Peter MAC Cancer Foundation in Australia.
Please accept this posting as your personal invitation to visit and participate in our new Forum.
If it is half as good as MPN Voice... we will have been successful...
Best wishes to all...
Steven
(Sydney)