Just introducing myself. I’ve just been diagnosed with ET - high platelets turned up randomly in a yearly blood test. I’ve now tested positive for the JAK2 mutation. My GP had never had a patient with this disorder before - when she said to take aspirin she was a bit embarrassed when I said that I’d already put myself on low-dose aspirin a month ago due to my own research into the disorder.
I have no symptoms whatsoever. Im 62 and I’m very fit - work out every weekday and it’s worrying to see some of you say this leads to fatigue? I also follow a strictly ketogenic diet.
Just saw a haematologist today for the first time and he thinks that low dose aspirin will be all I’ll need for many years.
I fly to Europe next week so he’s also suggested I use compression stockings to ward off blood clots and to ensure I drink plenty of water and get up and move a lot - two looong flights - 13hrs & 8hrs!
Any advice or extra info would be very welcome - this whole thing has been a bit of a shock to me - I’m someone who’s always gone out of their way to stay healthy and fit and I’ve never taken any form of medication.