Webinar (live streaming) of the MPN Voice Living... - MPN Voice

MPN Voice

10,340 members14,250 posts

Webinar (live streaming) of the MPN Voice Living with MPNs Day Saturday 16th November 2019, 9 am – 5 pm GMT

Mazcd profile image
MazcdPartnerMPNVoice
9 Replies

We are very pleased to announce that the Living with MPNs day will be streamed live online.

Register for the webinar

We are very excited that by streaming the day, live, it will mean that those of you who cannot attend in person will now be able to join us, via the internet.

To register for the webinar click on this link

secure.kinura.com/mpn-voice...

you will be redirected to the Kinura online registration page, once registered you will receive a confirmation email with a link to use on the day to enter the webinar.

If you are unable to join us via the webinar, or miss some of the sessions, videos of all the talks will be available on our YouTube channel so you can watch them at any time, we will send an announcement when they are available which will probably be in January next year.

Questions for the panel

The programme will include a panel discussion during the morning session, the panel will be answering questions from the audience, this will also include questions from the online audience. The webinar registration page has a question form to use to submit questions, the panel will endeavour to answer as many questions as they can during the session, however, due to time constraints it will not be possible to answer every question, if your question is not answered during this session it will be answered by email.

Please be aware that the panel/medical team cannot comment on or reply to individual cases, do not send in any test results with your questions, replying to questions on the day is not an alternative to your ongoing medical relationship with your own consultant or GP, so do try to ask general questions and don’t be disappointed if the panel/medical team do not give specific medical advice to you. The panel will only use first names when replying to questions live, i.e. Joe from the UK has asked....

If you have a question but would prefer not to have it submitted to the panel during the webinar, you can email it to info@mpnvoice.org.uk, you will receive a reply by email from a member of the panel. DO NOT PUT YOUR QUESTION FOR THE PANEL ON THIS PAGE, IT MUST BE EMAILED

Programme

A copy of the programme is available here...

mpnvoice.org.uk/documents/f...

Please note that the afternoon session ‘discussion groups’ will be a closed session and will not be filmed or streamed and will not be available as a video.

We do hope that you will join us on the day so that it will truly be an international MPN event.

Written by
Mazcd profile image
Mazcd
Partner
To view profiles and participate in discussions please or .
9 Replies
Aneliv9 profile image
Aneliv9

Maybe a silly question, but i live in Greece. What time should i register in order to view this live??

Mazcd profile image
MazcdPartnerMPNVoice in reply to Aneliv9

not a silly question at all, the time here in the UK at this moment is 2:40 pm, so in Greece it is 4:40 pm so you are 2 hours in front of the UK, therefore if the webinar is starting at 9 am UK time, it will be 11 am Greece time. Hope that is clear. Maz

Cja1956 profile image
Cja1956 in reply to Mazcd

I’d like to watch the YouTube videos. I am here in the US. When will they be posted and what do I put in the search box?

Mazcd profile image
MazcdPartnerMPNVoice in reply to Cja1956

The videos will not be available until sometime in January next year, we have to edit all the presentations and prepare them for uploading as videos, so it takes a bit of time. However, if you want to watch any of the presentations from the 2017 event all the details are available here mpnvoice.org.uk/about-us/vi...

Cja1956 profile image
Cja1956 in reply to Mazcd

Thanks

socrates_8 profile image
socrates_8

Hey Maz... 8-)

One word.

Awesome!

I shall enjoy going through the video after the event.

Thanks Maz for all you do...

Love your work... :-)

Steve

Mazcd profile image
MazcdPartnerMPNVoice in reply to socrates_8

thank you x

LottiSz profile image
LottiSz

This conference was just great! Thank you so much for organizing and also for live streaming it. I enjoyed every minute. (We MPNs are weird :D )

Mazcd profile image
MazcdPartnerMPNVoice in reply to LottiSz

Hi LottiSz so pleased you watched and enjoyed it. Maz

You may also like...

MPN Voice Living with MPNs Day 2019

This will be the 5th Living with MPNs Day that MPN Voice has hosted. This is your chance to hear...

MPN Voice Patients’ Forum London – Friday 24th July 2015, 6 – 9 pm Watch the forum Online

will be available to watch online, so if you are unable to join us in person you can register to...

The MPN Voice Living with MPNs Day

MPNs Day that MPN Voice has hosted, you are very welcome to attend with your family and friends,...

CHANGE OF DATE for the webinar for MPN patients relating to government guidance on COVID-19

already registered for the webinar you should have received an updated registration confirmation...

MPN Voice Patients’ Forum – London - 24th November 2014

refreshments will be available before and during the forum. To register please email...