First post...

[Atirax]

Hi everyone x I acquired ET back in ‘15. Found this site last year and have found a lot of information about my condition. I have to say I seem to have been very lucky with brilliant treatment from my NHS team. Constant changes to meds till bloods were reasonably balanced at an acceptable level. Now down to 12week visits yippppeee! But still with regular blood tests and telephone consults. Sorry that it seems to be a post code lottery where treatment/ information is concerned......

Good luck and fortune to all sufferers of any of the MPN conditions

[Rachelthepotter]

Hi. Welcome. Which hospital are you at? Glad you’ve found s good one.

[Osteomyelio]

Welcome, this website has been very helpful to me.

[mhos61]

Welcome Atirax. Glad you found us.

[Thornbirdr]

THE Teesside UK

[Thornbirdr]

Sorry that should read NHS

[Wyebird]

Also diagnosed 2015- October.

Stil on 6-8 week visits. Things seem to be looking up since on anagrelide though so looking forward to longer gaps between visits

[Atirax in reply to Wyebird]

It’s great when blood counts get into acceptable range and as lovely as your care team are it’s goid news to see them less often......