I am relatively new to the group having joined about a month ago. I find myself looking at the posts every day as a way to connect with people with similar medical issues to me. I am 48 and was diagnosed with ET when I was pregnant with my child - there were no previous issues or flags before then. My life has been relatively uneventful until recently - I have been on aspirin for the past 9 years. I had an unrelated bleeding issue and so was given a BMB to see what was going on.
Anyway the BMB results showed I was suffering with pre-MF and I started on weekly 45mg Pegasys injections almost immediately. Over the past few weeks, my platelet count has come down (at its highest it was around 1200) and I now (for the first time since I was pregnant) have a platelet count in the normal range. I have a few challenges with Pegasys (including some nausea), but generally I have done well on treatment.
I just wanted to say thank you. Being able to read the posts of other people with MPN has really helped me. It is hard suffering from an illness which is not well known and which most people have never held of. Knowing you are all around to ask questions (if/when I have then) has made it much easier to cope with my illness. My priority is to be around to watch my child grow up and be around for as long as I possibly can to be with her.
Thank you all!