Hi MPD family,
Hubby and I had a final meeting with Kay from MacMillan CC regarding our experience from symptoms, diagnosis and treatment. We were told that the story we told is so familiar but in the case of MPD's she found the lack of knowledge between the health professionals quite unbelievable. She had taken my advice and looked up this site and she said what we all think, that she found the information on here invaluable and appreciated the support it was offering everyone, whatever their form of MPD. She has taken our information which will become part of a larger study regarding the communication or lack off between cancer patients and their health provider. This is an ongoing study so I hope we can make a little bit of difference.
After seeing Kay we walked around to the MacMilllan Information clinic who, surprise, surprise, knew nothing about MPD's so i asked the lovely volunteer who I was speaking to if they would like a poster and information to display and they were very keen so I will be knocking on Maz's door again, bless her. I wanted a support group for my hubby to attend as everything is loaded on to him but he has nobody to talk to.
Can't wait for Monday now when I finally get to see Dr Plews, the first person in a year who should know what she's talking about. God bless MacMillan xx