I’m so confused! : I’m currently seeing a... - MPN Voice

MPN Voice

11,278 members15,752 posts

I’m so confused!

5 Replies

I’m currently seeing a gastroenterologist and I’ve been diagnosed with NAFL with stage 3 fibrosis.

He has written to my doctor advising them to refer me to a haematologist due to the symptoms I have, to check if I have PRV / secondary polycythemia

It was bad enough getting my head around liver fibrosis without throwing anything else into the mix 😳

Is liver issues and PRV linked somehow?

After spending the last year wanting reasons for how I felt I now feel like I’m on a roundabout trying to get off.

Do I really want to know 😢

5 Replies

Thanks for your response Kelly PRV stands for Polycythaemia rubra vera

in reply to

I’m sorry if I am not making myself clear, I know from the British Liver Foundation site that we are told that sites such as these can’t give out medical advice, nor should we put reports online.

Even more confused now , perhaps this was a bad idea 😬

Ebot profile image
Ebot

No! You should post here. You have a query about a potential PV diagnosis so you’re in the right Forum. Liver issues do crop up in the chats so hang on here. (I’m not sure what NAFL stands for.) I’m sure someone will have something to share. The time around diagnosis can do your head in! Be nice to yourself. Wishing you strength.

Heidi-W profile image
Heidi-W in reply toEbot

hi NAFL stands for non alcoholic fatty liver just for info

Bluetop profile image
Bluetop

Sorry I cant help with any potential links with your liver problems, but just to wish you well and an early diagnosis

Not what you're looking for?

You may also like...

Does anyone else with PRV have tooth loss?

Ive read posts on a couple of people on here that have PRV that have real bad tooth loss and or...
gtr1963 profile image

Ruxolitinib trial . I'm so unsure.

My haemotologist has asked me to consider being put forward for a trial of ruxolitinib . I'm very...

venesection at home?

might anyone please have any experience of a venesection at home for a PRV patient unable to...
LauraH1982 profile image

Is there anyone with PRV on HealthUnlocked living in Australia?

I came across this website after being diagnosed with PRV and talking to someone in the UK who also...
sand-bog profile image

Free prescriptions ~ expensive. Do I need proof of PV link?

Hi all, I'm hoping someone can help me. I was only recently officially diagnosed with PRV (Jaq+)...
Kari1961 profile image

Moderation team

Debinha profile image
DebinhaAdministrator
Mazcd profile image
MazcdPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.