Nervous

[Petsch]

Diagnosed with Et in January

Put on hydroxy and numbers have been dropping but I can’t get rid of this nervous jittery feeling. Have been to therapy still so nervous. Awful feeling

[Mazcd Partner MPNVoice]

hello Petsch, I am sorry to hear that you are still feeling like this, can you share with us why you are feeling like this, is it because of the Hydroxycarbamide, or just your MPN overall? Maz

[Petsch in reply to Mazcd]

I think it’s the meds and the unknown

[Mazcd Partner MPNVoice in reply to Petsch]

I can understand, you have only recently been diagnosed so it will take you a while to come to terms with it and how it will affect your daily life, but, as you can see from all the posts on this forum, there are very many of us who have been diagnosed for years and years and are still going strong. There is a lot of research going on all around the world into MPNs and we have learnt so much in recent years about MPNs and the new treatments for them, so be assured that the experts are doing a great job in finding out new ways to help us with new treatments etc. Try not to worry too much, I know that is easy to say, but it won't help you, perhaps you need to speak to your GP again about this and maybe have some more or different therapy to help you get through this period of anxiety. Best wishes, Maz

[Petsch]

What are the new treatments. I do have jak gene

[mhos61]

Sorry to hear you’re feeling a bit anxious. This is totally understandable. We all react differently to our MPN diagnosis.

If the talking therapy isn’t working for you, maybe a short course of antidepressants might help - at least until you come to terms with your ET. You don’t need this additional burden. You can always express any fears that you have on this forum and someone will answer you. Indeed, this maybe enough to relieve your present anxiety.

Don’t worry about the meds. They’re your best buddy right now. Anything that is going to reduce your thrombotic risk has to be a good thing. As Maz has said, research is ongoing and we should remain hopeful.

Take care

Mary x

[Roger41]

I was a mess head wise when I was first diagnosed.

A friend recommended,mindfulness, get off Google doctors, use a salt lamp, it works, calm sticks on pulse points,

Try to take light exercise I find this helps, I do my three gym sessions per week and a 5k walk at the week end.

Unlocking your reaction to a disease process is highly destructive, and is counter productive.

I have learnt to manage my condition, by letting the team sort out the condition, keep focused on being in a hood place by changing the way I think about things and slowly over three months I feel more positive.

My husband was a mare at first unroll I gave him a job to do and he is slowly getting better.

Find your support network take what you need from this web site and eventually everything will get better.

It's a mind game???

You control it.

It's just a defective gene that is chemically managed over time.

Regards.