I have been diagnosed JAK2+ MPN in the last few weeks. I was getting pain in my fingers and toes and dizzy spells and a blood test showed my red cells up at 900 odd. I have had bone marrow biopsy and it shows no scarring right now so its one or both of PCV or ET we think. I am currently just on Aspirin 75mg and have been having Venesections. I'm 38 and my consultant has not put me on any drugs to bring down my cell count. On last blood test it was around the 1.3 million mark but they have said, because of my relatively young age, they dont want to go onto any chemo drugs as there are other risks involved. My Haematocrit level (hopefully the right thing) has come down to 0.44 which they say is what they want to happen via the Venesections but , as I said my cell count is still quite high. I guess my question is should I be on anything else to bring the cell count down? Should I look at a second opinion? My consultant seems good but I have heard so many good things about Guys and Dr Harrison. I feel better than I have done in ages and the Aspirin seems to have solved most issues (apart from feeling knackered but two small kids also dont help that). I travel a lot for work on some long hall flights and have not really thought about whether that may be an issue with high cell counts. Any Advice? Sorry its a bit of a ramble post. My head has not really taken it all in and I am just really going along with what I am told but I think I may start seeking out advice myself.
Cheers for all the help. Its a great site and good to know there are others out there.