Retirement.. haven't posted for a while.. things have been fairly stable.
I'm due to retire in 4 days time.. age 54 but I need to take care of myself and enjoy my life. I'm in a good position to be able to do this.
Not everyone is that fortunate. I know my platelets will rise and eventually il have to take more than aspirin. Hoping retirement and relaxing may bring my platelets down..well I can hope...
I have ET and am Calr + . Been stable for about 4 years but never take anything for granted. I didn't think I'd ever accept this like I have. So anyone newly diagnosed who finds it hard to deal with this.. give yourself plenty of space and be kind to yourself..
Written by
heathermc
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I think you'll have a great time but a word of warning! I have found I have to select my 'volunteering' quite carefully - it has, at times, been amazingly stressful - as bad as working!
When working you have the right to expect high standards of output etc but volunteering means working with people who have elected to volunteer and are frequently not as professional as one is accustomed to. I tend to go for one-off things which I know I can achieve.
Good luck and happy life with low platelets! Sallie
I retired last October age 55. It was suggested by the works doctor as I've also had kidney cancer and skin cancer so I've had to have a fair amount of time off. I think he felt sorry for me and said go and enjoy your life and he enabled me to activate my pension. I also am calr+ but unfortunately retirement hasn't lowered my levels (currently 1.2million). I wish you well and enjoy your retirement.
I retired 10 months ago after working for many years in mental health. Having been diagnosed in 2007 and now having myelofibrosis (Jak 2+) retirement was the best ever. My platelets and everything else are the best they’ve ever been! I’ve been on Ruxilitinib since February 2016 but it’s only since retirement there has been a huge improvement. Highly recommend it!! Good luck with it and enjoy.... Bruddery
Hi I’m also ET Calr. Don’t pin your hopes up regarding a drop in platelets. I’m 62 and was retired for three years prior to diagnosis. You’ve done well to carry on working. I know I couldn’t have.
What I have noticed is that I get stressed very easily so hopefully the decrease in your work load will have a positive impact on your quality of life. Enjoy enjoy enjoy!
I have to agree with the other replies on this one Heather. I was diagnosed with ET after I had retired and although I am a busy retiree I don't think it makes a difference to platelets. Where it must help is with your general health - keeping stress levels down and being in full control of your life. Enjoy!
Hiya, good luck with the retirement, no guarantee it will work but it has for me, platelets below 360 now and reduced my HU by one third since I retired 18 months ago. I am triple negative so no ideal if the genetics has an impact but am sure that the reduction in stress has helped. I now am less tired but if I need a nap I have one. Take the time to listen to what your body needs and enjoy this time. Good luck
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