I had my check up today and my heamotologist has advised me to increase my HU to 1000 mg a day as my platelet count has been around 575 for 10 months.
I initially started on 500mg a day and then 500mg and 1000 mg alternate days Without much change to the platelet count
I have to go back weekly to make sure it doesn't affect my other counts . She did say that infection risk is higher but having a stroke is the more worrying .
I was wondering what dosage some of you are on and if it's affected you in any way as regards infections or side effects
She said I could leave it if I wasn't keen and go back in 4 weeks but her advice was to increase it
Also I was wondering how much the highest dose is that is safe to take and when it's time to try something else , perhaps Maz would know the answer
Thankyou and hope you are all well