Hey everyone...
I hope all are happy and mostly well with their various MPNs etc...
Just a quick question for anyone who might be able to shed some light.
My diagnosis was changed from ET to Myelofibrosis (CALR+) in late December 2016, and I have been taking 20mg x2 per day of Jakafi (along w/ aspirin x1 & Acclovir 800mg x2 per day), since that time.
Generally, I seem to have slightly more energy most days, while on others I just hit a wall of fatigue, and all I seem to be able to do is sleep... Nausea? Good & bad days; aches and pains are intermittent but I still do not sleep very well at all... My itchiness is all but completely gone (YAY!
Prior to commencing the Jakafi (Ruxolitinib) in December 2016, I was on Interferon (3M) every two (2) days, and my platelets had come right down to 537, before swapping over my med's. Since then my bloods were:
693; 791; 740 & 795 (today)
All my other vitals are looking on the improve, and my recent foray into my 12 week exercise regime has already seen me shed 8-9kg in a tad over 5 weeks...
My question for any and all my MPN family is:
Can anyone explain why my Platelets might now bouncing around at such high levels?
The only thing I have changed is recommenced taking a multiB vitamin because I tend to eat so very little these days...
Has anyone had any problems with taking vitamins?
I will see my specialist next Friday but I have sent her through my latest results...
I am a tad concerned of course because I know when I am exercising that my Platelets will be rising even higher too, and I do not want to risk a further TIA...
Thank you all in advance...
Steve
(Sydney)