The bones in my skull are disappearing & no one knows why. I've seen every Dr possible in Houston, TX Great medical center?

About 6 months ago, my bones that outline my skull are gone on the right & left side of my head, or there are 3in indentations to the right & left of my bumpy center bone. All my blood test & other tests are all normal, neurosurgeon thought I had Coupdesabre so I had to see an immunologist . All they know is that I have an auto immune disorder while my symptoms get worse:. (Night sweats, headaches, skin rash that went away, my eyes are irritated b/c they are dry, & I have bumps on my skull, & I lost 25 lbs. & now weigh 100lbs)!. I feel like I'm losing my mind! Someone even told me I may have implant poisoning but no test to confirm.

2 Replies

  • Hi. I would have a look at Sjogren's with those symptoms. Dry eyes etc. I had a similar bumpy effect on my skull due to vasculitis migraine. Sjogren's is a form of vasculitis. There definitely was no sign of bones disappearing just to be clear. I think the veins were so swollen with vasculitis it felt like I had crevices in my head. Very odd sensation. I would have a chat about this. No blood tests and scans are not helpful either.

  • I too, have been having lots and lots of headaches. I have an auto immune disease called Hashimotos. It has to do with the thyroid and my body attacking itself. I wonder if this has something to do with it. Lethargic often. I have a tingly feeling in that area, like I have a bug crawling around, or like sweat rolling down my scalp like my hair roots are moving