MPN Voice May 2016 Fundraising Update

I really can’t believe how quickly this year is going. So many wonderful MPN Voice supporters doing so many fantastic events, thank goodness the weather has started to get warmer, because there are a lot of you training outside for your challenges!

Please don’t forget, if you are planning your own event no matter how small, we would love to hear from you so that we can send you a fundraising pack and also let the wider MPN Voice Community know about what you are doing. Your event doesn’t have to be a huge challenge, it can be a gathering of friends and family, sponsored silence, coffee morning, readathon, whatever you feel you would like to do. Please contact us at

On Friday 13th May, twenty amazing MPN Voice supporters are taking part in the Abseil Challenge. They will be abseiling 250 feet down the front of St Thomas’ Hospital. The fantastic views as they go down will include Big Ben, the London Eye and the Houses of Parliament, I am sure it will be an experience they will never forget. I can’t wait to be there shouting encouragement and taking lots of photos for all of you to see. This is one of our new events in conjunction with Guy’s and St Thomas’ Charity.

So I have great pleasure in introducing the MPN Voice Abseil Team!!

All these amazing people either have a MPN or are supporting a family member or friend with a MPN. If you would like to sponsor any of our amazing team, I have given you their Just Giving or Virgin Money Page address.

Camilla Baker, Portia Baker, Lara Budgen -

Simon and Charlotte Fox -

Fiona McBain -

Helen Scott -

Sian Miles -

Ruth Barnett -

Chris Ray Virgin Money Giving Chris Ray’s Page  

David Brailsford and Team Altro - 

The members of Team Altro are;

David Brailsford, Sarah de los Rios, Ed de los Rios, Ron Austin, Rebecca Dermott, Laura Brewer, Domingo Lopez Dean, Val Brinson, Kathryn Nicholson- Brown and Levi Nicholson-Brown.

And now, some more amazing fundraisers who are walking and running for MPN Voice

Elise Walsh from 7th May for 10 weeks The South West Coast Path Challenge

Elise has set herself this huge challenge because she wants to fundraise to help MPN Voice fund research, so that a cure for our MPNs can be found. 

“I will be walking the 630 miles of the South West Coast Path, end to end, on my own with my faithful friend Fergus, my dog. We will start on 7th May and aim to complete it in 10 weeks, starting from Minehead in Somerset and finishing in Poole, Dorset.”

Elise, all of us at MPN Voice and the MPN Voice Community wish you all the best for your amazing challenge. Please take time to look at the wonderful scenery that you will see and please take lots of dog biscuits for Fergus because he is a star too!! 

We are looking forward to some wonderful photos! 

If you would like to support Elise and Fergus please go to her Just Giving Page at 

Lesley Thompson 22nd May Great Manchester 10k 

Last year, Lesley was diagnosed with myelofibrosis (MF). Lesley and her family want to support MPN Voice to raise funds for research. Her husband Rob has already had a raffle at work for MPN Voice, raffling off a hamper and there are also plans for a Comedy Night in November! 

Lesley, Rob and Lesley’s sister, have set themselves a bit of a challenge, to participate in the Great Manchester 10k on 22nd May. Training has been ok, but so much better now the weather has got a bit warmer!

Good Luck to you all, have a fantastic day and don’t forget it’s ok to walk as well!

If you would like to sponsor Lesley and her family, please contact us at

Sandie Ostler 22nd May Great Manchester 10k

Sandie recently signed up to take part in the Great Manchester 10k.

“My Aunt is currently living with myelofibrosis (MF), and she suggested supporting and raising money for MPN Voice as a way of helping fund research and raise awareness.”

Sandie has never done any running before, but has been really pleasantly surprised with her training, which is going well, especially now the sun is shining!

Thank you Sandie for training wearing your MPN Voice T-shirt and raising awareness.

If you would like to support Sandie, please go to her Just Giving Page at 

There is another event taking place at the end of May, the London BUPA 10k. I will introduce the MPN Voice BUPA 10k Team soon. 

Everyone at MPN Voice would like to say a huge Thank You to all our wonderful fundraisers and the MPN Voice Community for all your fantastic support.

You Are Amazing

The Fundraising Team


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