THANKS: Hi. I just want all of you to realize how... - MPN Voice

MPN Voice

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THANKS

katiewalsh profile image
14 Replies

Hi. I just want all of you to realize how amazing and wonderful you are. You're kind, concerned & compassionate and uplifting. I read most of the posts and replies and keep thinking how incredibly lucky I was to find this forum. Thank you all for being such very good people. Katie

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katiewalsh profile image
katiewalsh
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14 Replies
JediReject profile image
JediReject

Hi Katie I'm glad you found this forum. . You are right and it's a lovely compliment to the active forum folks who make it special. . I am totally blown away by the encouragement and support I get from the peops here, it certainly spurs me on every day.

Even though many of us have never met in person I find our forum is a safe haven where you can express your thoughts, ups, downs, and concerns and get supportive, non judgemental, and best advice from like minded without fear of ridicule or dismissive opinions. And I love our forum members all the more for that. . I hope you take what you need from it and go on to pay it forward in time. .

My best wishes to you Katie.

Chris x

Aime profile image
Aime

Hi Katie, I agree with you so much. I was worried, felt alone, couldn't sleep, my hubby didn't know how to deal with me or my diagnosis and I found this forum and a bunch of great people who don't judge but listen, support and empathise with you and my world changed from despair to relief and heaps of other emotions.

Thank goodness we have this support . Best wishes Aime xx😺

Nickthedevil profile image
Nickthedevil

Hi Katie I only found the forum in May and I couldn't agree more. The wonderful people on here keep me from losing the plot on bad days!

Karen x

Ps its a bad day today guys, the shin pain is driving me insane, and my lovely husband is away on business so I have no one to give it a rub for me! x

JediReject profile image
JediReject in reply toNickthedevil

It's not actually too comfortable massaging your own ankle , foot as I'm finding with this gout pinging. . Sorry your guy not there to assist, , ,x

linds profile image
linds in reply toNickthedevil

Hi Nick the Devil (I love that )

I wondered if you had tried one of those ice bags for muscle pain - not freezer cold but from the fridge. It might help. Wish you well though x Linds

Nickthedevil profile image
Nickthedevil in reply tolinds

Hi Linds I have tried them but thank you for thinking of me. Nick the devil comes from my childhood - my middle name is Nicola and my elder sisters said when I was small I had a terrible temper and Nick the devil became my 'nickname'.

Karen x

Aime profile image
Aime in reply toNickthedevil

Hi nickthedevil, I have a lot of different joint pain and inflammation of soft tissue. I go to a hydrotherapy pool and although the water and heat annoy my itchy skin, the warmth takes away bone and muscle pain! I would love to stay in all day as I feel so good in the water as long as I ignore the itch.xx Aime😺

Nickthedevil profile image
Nickthedevil in reply toAime

Aime that sounds like heaven! I will check it out, thanks.

Karen x

Nickthedevil profile image
Nickthedevil

Thanks Chris. Sorry your gout is still giving you gip. It's easier to reach the shin than the foot but doesn't have the same effect doing it yourself. Hope your counts are improving x

JediReject profile image
JediReject in reply toNickthedevil

True I used to get reflexology and it was great. . . My counts up a tad today so no transfusion needed. . Happy Days. . Hope your shin pain is improved. x

linds profile image
linds in reply toJediReject

Hi JD

The ice bag might help with the gout too. So glad you don't need transfusion - that's a step forward on the long road. Thinking of you x

Linda

Aime profile image
Aime in reply toJediReject

Chris, that's great about counts.xx Aime haven't experienced gout thank god, my burning arthritis and inflammation of soft tissue is bad enough. Hope you find something which helps. Aime x😺

Nickthedevil profile image
Nickthedevil

Thanks, will look into reflexology, Good news about no transfusion x

linds profile image
linds

Hello Katiewalsh,

You are one of us now - it's a good ship you are right.

Linds x

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