I have E.T. JAK NEG and was diagnosed 10 years ago.
In spite of informing my family of my illness, my children still ring me to ask "What is it that you've got Mum? " every time they have to fill in a medical form.
A breakthrough last week, my son asked actually asked about my recent blood test! A first in 10 years!!
Anyone else's family members show a lack of interest?
To be fair though, I do tend to play down symptoms and refer to my E.T. as my blood thing. Maybe I'm just trying to protect my children (grown up adults with their own families). I have found that I am happy to tell non- family members that I have a blood cancer but cannot bring myself to say it to my husband and children.