eeesential thrombocythemia?

im 29 years old with routine blood count platlets was 560 follow up after 1month it was 650 then reached 800 after another 1 month

i sought medical advice which suspect ET asked some investigtions jack 2 bcr abol and abdominal ultrasound

jack 2 and bcr abol were negative and no splenomegally by ultrasound

by continue follow up platlets decreaes to 660 after 2 months .

i have intese itching in my feet and hand relieved by antihistaminic

what shall i do next and these symptoms related to E.T OR NOT?

thanks in advance

9 Replies

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  • Hi - there is another test you should ask for - CALR. Only about 50% of ET Patients are JAK2 Positive.

    Make sure you keep pressing for answers. Good luck to you.

    Paul

  • ok thanks

  • No im from egypt

    my doctor already asked me to do bone marrow biopsy

    i will do it soon but im worried about the prognosis of ET

    what do you think ?

    thanks alot osidge

  • i have ET and often get itchy hands and feet! But you will probably need a bone marrow biopsy to confirm that you have it.

    Best wishes

    Lizzie

  • ok thanks i will do it soon

  • Hello Fady, you do need to speak to your GP about this or the haematologist. Maz

  • ok i will what do you think about the prognosis?

    thanks alot mazcd

  • I can't say I'm afraid, you will have to discuss this with your haematologist. Maz

  • I had terrible itching/crawling feeling all over my skin before I was diagnosed , it nearly drove me mad. Once I was diagnosed (et and pcv) and went on hydroxy it all stopped. I occasionally get irritated skin, but find SBC gels help me enormously. Hope all goes well for you.

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