eeesential thrombocythemia?: im 29 years old with... - MPN Voice

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eeesential thrombocythemia?

fady profile image
fady
9 Replies

im 29 years old with routine blood count platlets was 560 follow up after 1month it was 650 then reached 800 after another 1 month

i sought medical advice which suspect ET asked some investigtions jack 2 bcr abol and abdominal ultrasound

jack 2 and bcr abol were negative and no splenomegally by ultrasound

by continue follow up platlets decreaes to 660 after 2 months .

i have intese itching in my feet and hand relieved by antihistaminic

what shall i do next and these symptoms related to E.T OR NOT?

thanks in advance

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9 Replies
Paul42 profile image
Paul42

Hi - there is another test you should ask for - CALR. Only about 50% of ET Patients are JAK2 Positive.

Make sure you keep pressing for answers. Good luck to you.

Paul

fady profile image
fady in reply toPaul42

ok thanks

lizzziep profile image
lizzziep

i have ET and often get itchy hands and feet! But you will probably need a bone marrow biopsy to confirm that you have it.

Best wishes

Lizzie

fady profile image
fady in reply tolizzziep

ok thanks i will do it soon

Mazcd profile image
MazcdPartnerMPNVoice

Hello Fady, you do need to speak to your GP about this or the haematologist. Maz

fady profile image
fady in reply toMazcd

ok i will what do you think about the prognosis?

thanks alot mazcd

Mazcd profile image
MazcdPartnerMPNVoice in reply tofady

I can't say I'm afraid, you will have to discuss this with your haematologist. Maz

fady profile image
fady

No im from egypt

my doctor already asked me to do bone marrow biopsy

i will do it soon but im worried about the prognosis of ET

what do you think ?

thanks alot osidge

nivana profile image
nivana

I had terrible itching/crawling feeling all over my skin before I was diagnosed , it nearly drove me mad. Once I was diagnosed (et and pcv) and went on hydroxy it all stopped. I occasionally get irritated skin, but find SBC gels help me enormously. Hope all goes well for you.

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