Hi Everyone, I have ET Jak2 positive and take 2 x 500 mg Hu daily and aspirin. I was diagnosed in 2011 after presenting to my GP with a host of symptoms so it wasn't a routine blood test. I feel dizzy, woozy, spaced out, blurred vision, itchy, tired etc when my platelets are high. Does anyone else feel this because I note lots of people don't have symptoms!!!!!!
I recently halved my dose of Hu to give my white cells a chance to climb as they where too low. A month on and I feel odd and I know when I go to see the Consultant tomorrow they will have climbed and he will have to increase my dose again.
Is this unusual or are there others out there as sensitive as I am? Best wishes Indy x