Topamax medication tonorevent migraines - National Migraine...

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Topamax medication tonorevent migraines

Blacklockl profile image
7 Replies

Hi I have been a migraine suffer for the last 10 years. I have tried everything over the years in the last few months I have been getting migraine twice to three times per week and they are now unmanageable. My GP has recommended topamax I have always avoided this due to the side effects. However I am now in a position where I have no choice but to try it . Has anyone else tried this I am apprehensive ??? Has anyone else tried the calcium channel blocker

Thanks

Lynn

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Blacklockl profile image
Blacklockl
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7 Replies

Hi,

Yes, I tried topamax for 10 years. It does have a lot of side effects but I was able to work, have a social life and feel normal (before migraines). I've stopped taking it because it stopped working.

Blacklockl profile image
Blacklockl in reply to

Hi thanks for your reply that's really helpful

Lynn

KateeB profile image
KateeB

Sorry didn't work for me but no side effects. Candesartan has helped me where no other medication has done. Good luck

Cat00 profile image
Cat00

Didn't work on me but like KateeB it gave me no side effects either.

blinc profile image
blinc

Hi, worked for me for a year or so (side effect of tingling extremities gradually subsided to nothing), then gradually stopped being so effective. My gp altered dosage (up & down), but it ended up not working at all, so i too stopped.

Now taking a combo of Amitriptylene & Propanolol. Early days, but it seems to be working. Once again, everyone is so different. Good luck:)

YvonneBee1404 profile image
YvonneBee1404

I've just seen two Neurologists and been diagnosed with silent migraine ( constant , with aura)

Never had anything like this in my life ! So debilitating too

I've just been prescribed Topiramate and I'm hoping it'll work and get rid of the constant drunk feeling , fatigue and visual / concentration problems . I feel shattered all the time

Can anyone relate to this ?

Dlemke11 profile image
Dlemke11

I tried Topemax for about a year until I couldn't take it anymore. I had the common side effect of the numbness and tingling in my extremities but if that was it I would have stuck with it. My biggest issue was that I felt like I was in a cloud all the time, like I was on the outside looking in on my life. One specific time I was in class and raised my hand to speak and when the teacher called on me I just lost my entire train of thought. I couldn't even put together a complete sentence. This was the breaking point. And in addition to all that, I didn't really find that it made a difference in the frequency of migraines either. A little background: I started getting migraines around age 14 and they were debilitating and came very often (2-3) times per week. I am now on a combination of fluoxetine (for anxiety) amitryptaline (for migraines). I'm now down to maybe 1 or 2 migraines a month. It (only) took 10 years to get here lol

But as for you, medications work differently for everyone, some people love them, some people hate them. You do what works for you. I hope for the best!

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