Good day folks!
Sometimes I go through the most horrible of times. It's completely unpredictable, but utterly devastating when it happens. No warnings, nothing. I wake up and it's there and nothing will shift it. Cue days of agony, distress, no appetite, no sleep and being bedridden in a dark room. Then, there's the next part, the dizziness and disorientation for up to 72 hours after the pain has subsided. These together mean I can be housebound for the best part of a week. An incredibly frustrating time where I become dependent on family members to provide for me like a carer would do for a client. Bringing me food even though I've no real motivation to eat. Bringing me drinks to keep hydrated. Making sure I administer my daily medication (I have type 1 diabetes which requires insulin therapy and long term depression for which I'm taking prescribed medication). Obviously, if I miss either of these treatments terrible things could occur...
Yes, I'm talking about migraine headaches (and possibly cluster headaches too). Through medical records I can trace these headaches back to when I was 12 years old. I am now 45 (46 in May). They are hell on Earth.
I can go to bed feeling perfectly well, have a good nights sleep, then wake up in the morning in complete agony. No painkiller will shift them (and I've tried many). Some, in fact, have made the pain worse. I genuinely feel that I cannot cope. Completely out of family and public life. I've put up with this suffering silently for decades. But it got to the point where my partner and daughter had simply had enough. They didn't wish to see me like this any more as it was, quite understandably, very upsetting for them. So to the doctors I went (under duress and escorted by my daughter). I was prescribed Propranolol MR 80mg capsules of which I take one daily. Also, I've been booked to see a neurologist in April. Something to look forward to...
As well as the migraine attacks, I also suffer from depression. This was diagnosed in 1998 after I discovered the abuse of my daughter at the hands of her stepfather. She was but 3 years old at the time. After always being of good mental health I spiraled downward rapidly. 18 years on and I'm still on prescribed medication (100mg of Sertraline per day). I am very dependent on these tablets. I once tried stopping for a while and very nearly drove my family away. I became very nasty, aggressive, destructive and unpredictable. Once again I was escorted to the doctors by my daughter....
Even with the Sertraline (which I do take religiously before bed every evening) I regularly find myself completely intolerant of other people, mainly strangers. I find them irritating, even annoying. Shopping is possibly the worst time for this. Everything starts off just fine. Calm, quiet, happy enough. After a short while I'm completely irate. Angry. Furious! Just long in to be away from these irritants (no disrespect to any person here. It's not their fault). Even at home I require time alone. I find myself sitting separately to other family members, often in a separate room with music playing on headphones. Quiet music which I find relaxing (Waiting For Cousteau by Jeanne Michel-Jarre in a work of art and is my favourite at these times).
Diabetes. I was diagnosed with type 1 in 2001 at the age of 31. Apparently not many people are diagnosed type 1 at that age. I manage the condition with Novo Rapid insulin with meals accompanied with a once a day injection of Levemir as a background insulin. My blood sugar levels can go haywire whilst I'm suffering a migraine attack. I'm not eating and drinking correctly. The pain and the stress. This leads to the glucose level yoyo (up and down...) It's just a horrible, unbearable time for my family and I and, as I stated previously, I have no idea when the migraines will strike or how long I will be incapacitated for. It's a complete nightmare. Not just with the migraines, but with the other health factors thrown into the mix to create merry hell.
Anyway, I was wondering if, with all these lovely things going on at unpredictable intervals, whether or not I would be able to claim DLA or any other appropriate benefit. I am not clued up on such things, so I've laid myself bare here in the hope of some help and advice with this matter.
I've gone on a bit I know. But if your still awake any advice would be greatly welcomed and appreciated.