Well, the latest round of tests are back and I don't have Hughes syndrome. (Thanks for the tip on that one!) However I have tested positive for Lupus Anticoagulants, which is a complete misnomer as it's not an anticoagulant disorder at all rather it's a hyper-coagulant disorder. But unlikely to have any effect on the constant head pain that has not stopped once for 18 months now.
Botox injections start next week, and whilst I'm hesitant about putting what amounts to poison in my head/face my mood is getting so low that I will do just about anything at this point to have a chance at making the pain stop.
Haematology appointments now join the ever-lengthening list of places I need to be, and to be completely honest, I'm too tired to keep fighting this. It's getting harder and harder and I'm tired.