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Myasthenia Gravis Association

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Huperzine A for Myasthenia Gravis

Despite mounting evidence that I have progressively-worsening MG with Class III weakness, I still don't have a diagnosis, let alone a treatment. I can't do...

Despite mounting evidence that I have progressively-worsening MG with Class III ...

•1 month ago

moving forward slowly

so today had tests and told its most certainly myasthenia. still I have lots of questions as ptosis followed by awful systemic problems and myasthenia is...

so today had tests and told its most certainly myasthenia. still I have lots of ...

•4 months ago

anyone around

I know there's the Facebook page but is anyone here , not everyone ha Facebook and feel one shouldn't cancel the other HU has been invaluable a shame to see...

I know there's the Facebook page but is anyone here , not everyone ha Facebook a...

•4 months ago

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general anaesthesia

Hi I am to have a general anaesthesia and with no diagnosis of myasthenia but fitting symptoms for years and told by one doc they think it is and another no...

Hi I am to have a general anaesthesia and with no diagnosis of myasthenia but f...

•7 months ago

Caffeine Boost to Acetylcholine in NMJ?

After many years, I still have no diagnosis. I have all the symptoms of PMR, but no detectable inflammation (which is the usual cause). I also have half the...

After many years, I still have no diagnosis. I have all the symptoms of PMR, but...

•9 months ago

Hi! Just joined. Is there MG-lite?

I recently found out I have 0.12nmol/L of anti-AChR antibodies, but am told that's too low to be of any consequence. I certainly don't have the tell-tale...

I recently found out I have 0.12nmol/L of anti-AChR antibodies, but am told that...

•10 months ago

flares of voice loss

I have no diagnosis but symptoms suggestive of mg, ice opens eye and weakness comes and goes and have had flares of hoarseness but now more often when suffer...

I have no diagnosis but symptoms suggestive of mg, ice opens eye and weakness co...

•10 months ago

ice test

hi has anyone had negative bloods but positive ice test for myasthenia

hi has anyone had negative bloods but positive ice test for myasthenia

•1 year ago

anyone with myasthenia and svcs please

has anyone with myasthenia here had svcs (super venous cava syndrome thankyou or any doctors reading have any advice with this please

has anyone with myasthenia here had svcs (super venous cava syndrome thankyou or...

•1 year ago

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undiagnosed

I am undiagnosed but fitting symptoms and specialists leading this way though would be seronegative if is. the newest symptom I have is sometimes half of my...

I am undiagnosed but fitting symptoms and specialists leading this way though wo...

•1 year ago

misdiagnosis 🤷‍♀️

I am somewhat confused. I was diagnosed with Fibromyalgia a few years ago and as I was aware of Myasthenia Gravis due to my dad having the condition I asked to...

I am somewhat confused. I was diagnosed with Fibromyalgia a few years ago and as...

•1 year ago

Ocular problem

Hi. Almost two year ago i start having a small ptosis that later bring pain around the eye, eyebrow tgat transform in drooling face for few minute and lost of...

Hi. Almost two year ago i start having a small ptosis that later bring pain arou...

•2 years ago

cellcept and nausea

has anyone had many difficulties with nausea while on cellcept? I seem to be struggling a bit and think cellcept may be the culprit. Thanks

has anyone had many difficulties with nausea while on cellcept? I seem to be st...

•2 years ago

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Travel and Myasthenia Gravis

My husband and I, retired traveled lots prior to Covid. Now MG diagnosis of two years has me in panic. Neurologist says only travel near a Trauma center,...

My husband and I, retired traveled lots prior to Covid. Now MG diagnosis of two ...

•2 years ago

Ocular Myasthenia Gravis or Congenital Myasthenic Syndrome

Has anyone been diagnosed with Ocular Myasthenia Gravis which may have been a misdiagnosis? Husband diagnosed with seronegative OMG in 2008 age...

Has anyone been diagnosed with Ocular Myasthenia Gravis which may have been a mi...

•2 years ago

What is the worst symptom you suffer with MG of any sort

I have a couple, one being Fatigue, also my pain due to other illness has deteriorated badly that now im nearly housebound. Last one my diet, with having...

I have a couple, one being Fatigue, also my pain due to other illness has deteri...

•2 years ago

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Myasthenia Gravis

It makes me very tired and I cannot walk comfortably more than 50 yards., usually with a stick. I also sleep a great deal and my legs ache.

It makes me very tired and I cannot walk comfortably more than 50 yards., usuall...

•2 years ago

Blood test results

Is anyone able to explain the MG blood test to me please. Seen the neurologist today, who said my symptoms lead her to believe it’s MG and my blood test that...

Is anyone able to explain the MG blood test to me please. Seen the neurologist t...

•3 years ago

Can anyone relate?

Can anyone relate to this photo?? - I’m under investigation for many things atm autoimmune and autoinflammatory related issues. This has been happening from...

Can anyone relate to this photo?? - I’m under investigation for many things atm ...

•3 years ago

Nerve/muscle pain? AchR Positive?

Hi all! I have been on the long journey to getting my symptoms diagnosed for years! I have muscle weakness in limbs, difficulty breathing often, muscle pain...

Hi all! I have been on the long journey to getting my symptoms diagnosed for yea...

•3 years ago

Are normal nerve conduction tests conclusive

Hello everyone I have been told over the years that there was a good possibility of me having myasthenia due to ptosis of my eyelid, exotropia, exophoria,...

Hello everyone I have been told over the years that there was a good possibility...

•3 years ago

MG test

Can MG test ever be a false positive?

Can MG test ever be a false positive?

•3 years ago

Could I have Myasthenia Gravis, please help!

Hi everyone, I wonder if you could help me out. Could my symptoms be related to Myasthenia Gravis? I've been very sick for some time, which has got...

Hi everyone, I wonder if you could help me out. Could my symptoms be related to...

•3 years ago

Myasthenia Gravis mimicking a Stroke. How does the Doctor diagnose which you are having, in an A & E emergency situation? Rather concerned.

just watching the FAST Stroke advert on tv tonight and realised the stroke symtoms are incredibly similar to MG. Drooping face, eyelids, mouth, slurred speech,...

just watching the FAST Stroke advert on tv tonight and realised the stroke symto...

Pollynolongerinagony

•4 years ago

Does Simvastatin cause onset of Myasthenia Gravis?

The connection between Simvastatin and PMR is established, and I would be grateful for any feedback on the statement below: The use of blood...

The connection between Simvastatin and PMR is established, and I would be gratef...

Pollynolongerinagony

•4 years ago

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LIVING LIFE AFTER LIFE SUPPORT ...MYASTHENIA GRAVIS GRAVIS CRISIS

I am so grateful and blessed to still live ,life , to have a heartbeat , respiration without assistance ,brainwave activity ,swallowing ,talking , walking...

I am so grateful and blessed to still live ,life , to have a heartbeat , resp...

•4 years ago

Myasthenia Gravis ,My Dandelion ,My Life

Diagnosing was just as problematic as Living with Myasthenia Gravis , just like the Dandelion. I pluck from my garden ,they disappear momentarily and reappear,...

Diagnosing was just as problematic as Living with Myasthenia Gravis , just like ...

•4 years ago

Myasthenia Gravis I don’t really understand it all still was diagnosed in April 2029 now have diabetes as well August 20

Hi I have Anti-MuSK MG I’m on 35mg prednisolone soon starting on Azathioprine. Any one else on this medication for MG ?

Hi I have Anti-MuSK MG I’m on 35mg prednisolone soon starting on Azathioprine. A...

•4 years ago

Hola de chile

Tengo miastenia desde hace tres años pero no he conocido a nadie con esta enfermedad

Tengo miastenia desde hace tres años pero no he conocido a nadie con esta enferm...

•4 years ago

Reducing steroids

How would you suggest reducing steroids from 15mg to 10mg? I have been on steroids for many years? Many thanks Annette

How would you suggest reducing steroids from 15mg to 10mg? I have been on steroi...

•5 years ago

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