Posts - Myasthenia Gravis Association | HealthUnlocked

Myasthenia Gravis Association

419 members • 89 posts

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Caffeine Boost to Acetylcholine in NMJ?

After many years, I still have no diagnosis. I have all the symptoms of PMR, but no detectable inflammation (which is the usual cause). I also have half the...

After many years, I still have no diagnosis. I have all the symptoms of PMR, but...

AtopicGuy

•2 months ago

2 Replies

Hi! Just joined. Is there MG-lite?

I recently found out I have 0.12nmol/L of anti-AChR antibodies, but am told that's too low to be of any consequence. I certainly don't have the tell-tale...

I recently found out I have 0.12nmol/L of anti-AChR antibodies, but am told that...

AtopicGuy

•3 months ago

5 Replies

flares of voice loss

I have no diagnosis but symptoms suggestive of mg, ice opens eye and weakness comes and goes and have had flares of hoarseness but now more often when suffer...

I have no diagnosis but symptoms suggestive of mg, ice opens eye and weakness co...

stiff19

•3 months ago

2 Replies

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ice test

hi has anyone had negative bloods but positive ice test for myasthenia

stiff19

•5 months ago

11 Replies

anyone with myasthenia and svcs please

has anyone with myasthenia here had svcs (super venous cava syndrome thankyou or any doctors reading have any advice with this please

has anyone with myasthenia here had svcs (super venous cava syndrome thankyou or...

stiff19

•5 months ago

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undiagnosed

I am undiagnosed but fitting symptoms and specialists leading this way though would be seronegative if is. the newest symptom I have is sometimes half of my...

I am undiagnosed but fitting symptoms and specialists leading this way though wo...

stiff19

•8 months ago

2 Replies

misdiagnosis 🤷‍♀️

I am somewhat confused. I was diagnosed with Fibromyalgia a few years ago and as I was aware of Myasthenia Gravis due to my dad having the condition I asked to...

I am somewhat confused. I was diagnosed with Fibromyalgia a few years ago and as...

Blueoxo

•10 months ago

27 Replies

Ocular problem

Hi. Almost two year ago i start having a small ptosis that later bring pain around the eye, eyebrow tgat transform in drooling face for few minute and lost of...

Hi. Almost two year ago i start having a small ptosis that later bring pain arou...

Shadow35

•1 year ago

4 Replies

cellcept and nausea

has anyone had many difficulties with nausea while on cellcept? I seem to be struggling a bit and think cellcept may be the culprit. Thanks

has anyone had many difficulties with nausea while on cellcept? I seem to be st...

Sawdust23

•1 year ago

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Travel and Myasthenia Gravis

My husband and I, retired traveled lots prior to Covid. Now MG diagnosis of two years has me in panic. Neurologist says only travel near a Trauma center,...

My husband and I, retired traveled lots prior to Covid. Now MG diagnosis of two ...

Bailey50

•2 years ago

1 Reply

Ocular Myasthenia Gravis or Congenital Myasthenic Syndrome

Has anyone been diagnosed with Ocular Myasthenia Gravis which may have been a misdiagnosis? Husband diagnosed with seronegative OMG in 2008 age...

Has anyone been diagnosed with Ocular Myasthenia Gravis which may have been a mi...

Jen2803

•2 years ago

4 Replies

What is the worst symptom you suffer with MG of any sort

I have a couple, one being Fatigue, also my pain due to other illness has deteriorated badly that now im nearly housebound. Last one my diet, with having...

I have a couple, one being Fatigue, also my pain due to other illness has deteri...

jonnylongton

•2 years ago

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Myasthenia Gravis

It makes me very tired and I cannot walk comfortably more than 50 yards., usually with a stick. I also sleep a great deal and my legs ache.

It makes me very tired and I cannot walk comfortably more than 50 yards., usuall...

AnnetteB

•2 years ago

3 Replies

Blood test results

Is anyone able to explain the MG blood test to me please. Seen the neurologist today, who said my symptoms lead her to believe it’s MG and my blood test that...

Is anyone able to explain the MG blood test to me please. Seen the neurologist t...

BabyOleg

•2 years ago

4 Replies

Can anyone relate?

Can anyone relate to this photo?? - I’m under investigation for many things atm autoimmune and autoinflammatory related issues. This has been happening from...

Can anyone relate to this photo?? - I’m under investigation for many things atm ...

BabyOleg

•2 years ago

3 Replies

Nerve/muscle pain? AchR Positive?

Hi all! I have been on the long journey to getting my symptoms diagnosed for years! I have muscle weakness in limbs, difficulty breathing often, muscle pain...

Hi all! I have been on the long journey to getting my symptoms diagnosed for yea...

roseissick

•2 years ago

1 Reply

Are normal nerve conduction tests conclusive

Hello everyone I have been told over the years that there was a good possibility of me having myasthenia due to ptosis of my eyelid, exotropia, exophoria,...

Hello everyone I have been told over the years that there was a good possibility...

Tinker5

•3 years ago

6 Replies

MG test

Can MG test ever be a false positive?

Gigiself

•3 years ago

2 Replies

Could I have Myasthenia Gravis, please help!

Hi everyone, I wonder if you could help me out. Could my symptoms be related to Myasthenia Gravis? I've been very sick for some time, which has got...

Hi everyone, I wonder if you could help me out. Could my symptoms be related to...

LPLx

•3 years ago

16 Replies

Myasthenia Gravis mimicking a Stroke. How does the Doctor diagnose which you are having, in an A & E emergency situation? Rather concerned.

just watching the FAST Stroke advert on tv tonight and realised the stroke symtoms are incredibly similar to MG. Drooping face, eyelids, mouth, slurred speech,...

just watching the FAST Stroke advert on tv tonight and realised the stroke symto...

Pollynolongerinagony

•3 years ago

7 Replies

Does Simvastatin cause onset of Myasthenia Gravis?

The connection between Simvastatin and PMR is established, and I would be grateful for any feedback on the statement below: The use of blood...

The connection between Simvastatin and PMR is established, and I would be gratef...

Pollynolongerinagony

•3 years ago

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LIVING LIFE AFTER LIFE SUPPORT ...MYASTHENIA GRAVIS GRAVIS CRISIS

I am so grateful and blessed to still live ,life , to have a heartbeat , respiration without assistance ,brainwave activity ,swallowing ,talking , walking...

I am so grateful and blessed to still live ,life , to have a heartbeat , resp...

faithhope421

•3 years ago

9 Replies

Myasthenia Gravis ,My Dandelion ,My Life

Diagnosing was just as problematic as Living with Myasthenia Gravis , just like the Dandelion. I pluck from my garden ,they disappear momentarily and reappear,...

Diagnosing was just as problematic as Living with Myasthenia Gravis , just like ...

faithhope421

•3 years ago

4 Replies

Myasthenia Gravis I don’t really understand it all still was diagnosed in April 2029 now have diabetes as well August 20

Hi I have Anti-MuSK MG I’m on 35mg prednisolone soon starting on Azathioprine. Any one else on this medication for MG ?

Hi I have Anti-MuSK MG I’m on 35mg prednisolone soon starting on Azathioprine. A...

Slg17

•3 years ago

8 Replies

Hola de chile

Tengo miastenia desde hace tres años pero no he conocido a nadie con esta enfermedad

Tengo miastenia desde hace tres años pero no he conocido a nadie con esta enferm...

sergiolopez

•4 years ago

1 Reply

Reducing steroids

How would you suggest reducing steroids from 15mg to 10mg? I have been on steroids for many years? Many thanks Annette

How would you suggest reducing steroids from 15mg to 10mg? I have been on steroi...

AnnetteB

•4 years ago

27 Replies

Do all diagnoses come with eye problems?

Hi all, Not been diagnosed, yet, but I'm just curious how many of you have been diagnosed but don't have any, or serious, issues with your eyes or eyelids?...

Hi all, Not been diagnosed, yet, but I'm just curious how many of you have been...

DaveT81

•4 years ago

10 Replies

Need help.

Hi. Mel here I have had myasthenia gravis for several years now and I come under the most vulnerable people so I have to stay in even though I'm a key worker....

Hi. Mel here I have had myasthenia gravis for several years now and I come under...

buddybel01

•4 years ago

2 Replies

Mg medication

Hello everyone,I have been diagnosed with Mg before 3 months now and I'm on pryidostigmine 60mg 3× a day and prednisolone 15mg a day,all the symptoms are under...

Hello everyone,I have been diagnosed with Mg before 3 months now and I'm on pryi...

Saba8100

•4 years ago

5 Replies

Stepson

My boyfriends son has Congenial Myasthenia and was a really poorly baby before his diagnosis. He is now 12yrs old, he has his medicine everyday and he is...

My boyfriends son has Congenial Myasthenia and was a really poorly baby before h...

Hidden

•4 years ago

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Posts - Myasthenia Gravis Association | HealthUnlocked

Myasthenia Gravis Association

Caffeine Boost to Acetylcholine in NMJ?

Hi! Just joined. Is there MG-lite?

flares of voice loss

ice test

anyone with myasthenia and svcs please

undiagnosed

misdiagnosis 🤷‍♀️

Ocular problem

cellcept and nausea

Travel and Myasthenia Gravis

Ocular Myasthenia Gravis or Congenital Myasthenic Syndrome

What is the worst symptom you suffer with MG of any sort

Myasthenia Gravis

Blood test results

Can anyone relate?

Nerve/muscle pain? AchR Positive?

Are normal nerve conduction tests conclusive

MG test

Could I have Myasthenia Gravis, please help!

Myasthenia Gravis mimicking a Stroke. How does the Doctor diagnose which you are having, in an A & E emergency situation? Rather concerned.

Does Simvastatin cause onset of Myasthenia Gravis?

LIVING LIFE AFTER LIFE SUPPORT ...MYASTHENIA GRAVIS GRAVIS CRISIS

Myasthenia Gravis ,My Dandelion ,My Life

Myasthenia Gravis I don’t really understand it all still was diagnosed in April 2029 now have diabetes as well August 20

Hola de chile

Reducing steroids

Do all diagnoses come with eye problems?

Need help.

Mg medication

Stepson

Search posts

Latest poll

Do you feel that your doctor helps you understand your condition?

Topics

Archive