Nerve/muscle pain? AchR Positive?

[roseissick]

Hi all! I have been on the long journey to getting my symptoms diagnosed for years! I have muscle weakness in limbs, difficulty breathing often, muscle pain and eye drooping on the right side. A few days ago I found out my AchR antibodies were positive (I actually have another autoimmune disease already too- IBD)

One symptom I experience often is nerve pain/neuropathic pain in affected limbs but I can't find much about this online? Does anyone else experience pain with MG? It's just making me question myself/validity of my symptoms...I know it shouldn't.

Also...the AchR test is new to me...it's a low positive but it's still positive and from what I've discovered it's a pretty rare and specific antibody. So would a low positive still be diagnostic/suggestive of MG? Just don't want to be fobbed off....again!

Thanks all!

Nia

[Blueoxo]

Hi Nia, I too have had recent blood tests results which both came back showing slightly elevated levels for the same antibodies you describe. I struggle with fatigue and breathing but no loss of muscle function or eye problems. I was diagnosed with Fibromyalgia last year and put the aching, stiffness and fatigue down to that. However the neurologist has given me a provisional diagnosis of Myasthenia and a possible differential diagnosis of lambert Eaton pending results of the CT scan and nerve conduction tests. He made the diagnosis based on the blood test results alone, which are only slightly raised, he thinks I have mild symptoms. He started me on mestonin which seems to be helping with the breathing. The neurologist thinks the fatigue I inexperience is more likely caused by the the myesthenia than fibromyalgia but that doesn’t explain the aches and pains. I am wondering too is this is part of the myesthenia due to the muscles becoming tired but they do say there is no pain with it. I have seen others describe aching and a pins and needles which I experience too. I hope this is helpful,