anyone around: I know there's the... - Myasthenia Gravis...

Myasthenia Gravis Association

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anyone around

stiff19 profile image
6 Replies

I know there's the Facebook page but is anyone here , not everyone ha Facebook and feel one shouldn't cancel the other HU has been invaluable a shame to see unattended it seems

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stiff19 profile image
stiff19
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6 Replies
piglette profile image
piglette

Perhaps mention this page on Facebook? I think it is easier to read than Facebook.

stiff19 profile image
stiff19 in reply topiglette

I think so too and lots here under one roof

tallyho profile image
tallyho

I have both,support is a lot quicker on FB as more people use it. I don’t use any other SM unless you call LinkedIn as such. I only don’t do FB on a Sunday. Having type 1 diabetes and a pump user FB has been invaluable.

stiff19 profile image
stiff19

yes I have heard the same but just wonder why one would cancel the other as HU is a call for many and the general HU has been invaluable just many seem to have disappeared and there needs to be more than one place to go

Polly-S profile image
Polly-S

Same, I prefer HU (don'tlike FB becauseof all the adverts), but the MG page here is too lonely and quite...

stiff19 profile image
stiff19

I find it a jumble and hard to deal with ,I find HU easier and yes it is very quiet here so glad a couple of you have replied 🙏

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