Myasthenia Gravis

[AnnetteB]

It makes me very tired and I cannot walk comfortably more than 50 yards., usually with a stick.

I also sleep a great deal and my legs ache.

[chrisj]

Hi - I feel for you. My mother was diagnosed with MG in her 80s and struggled to cope, she became very depressed. Even a little hoovering became too much for her as it affected her upper strength.

It started with her not being able swallow properly, she was hospitalised eventually. It took some time they treated her with drips and meds, she came home but was never the same again. We moved her out of the 3 bed rented property into a small one bed bungalow to makes things easier for her.

[CDreamer]

Are you being treated? It can often take a while to find the right balance for you. 8 years in I am medicated and relatively stable but still tire quickly. Pacing yourself is everything.

[AnnetteB in reply to CDreamer]

Yes, thanks. I am not too bad, just tire quickly.