Losing the Mind Battle with Mental He... - Mental Health Sup...

Mental Health Support

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Losing the Mind Battle with Mental Health Charities.

Tikirob profile image
13 Replies

It’s 1pm I just finished making breakfast. My apartment is dirty and clothing piles stare me down like I am a sucker. I sacrificed self care all week, showers, changing, and bills, in order to be able to clear my belongings from my old apartment, one which I was asked to leave from by my partner of 7 years do to my disorder. I am sad and exhausted. It just took me two hours to get up and make breakfast and now I have to clean it up so the bugs don’t take over.

What I also did during this week of sacrifice and self care is engage with the world of mental health charities. For 2 years I have been engaging in my own self respect preservation by calling up helplines, state and city agencies, and yes mental health charities. With the exception of one wonderful person who runs his own hotline none of these other places claiming to support mental health sufferers gave me a hand and in the case of NAMI, maybe the biggest mental health agency it has wasted my time and created stress for me.

This agency acts like it’s an advocate for mental health services. I proposed working with them to get the ball rolling on how anxiety sufferers are treated. I was asked to attend a group and was told I could talk to the director afterwards. I went and participated and the director left before the meeting ended. I called to follow up three times and he never returned my call so I stopped engaging with NAMI for a while.

I am in a bad spot. I am in debt and looking at being homeless I will have no where to live except my car in a two months and it’s cold out. I decided to contact another NAMI for help hoping it would be different. I was given the number of the President there called and her mailbox was full. Argh! Ok be patient I thought, try calling the main office again. I did and was rebuked as to why I did not text her, I told them that I did not think it was a possibility, I assumed it was an office number or just did not have the mental wherewithal to solve the issue, but I kept my composure and asked if I could speak to her now. “Are you coming to the meeting today?” I was asked, I drew a blank...what meeting I responded, “I told you about it last time...” well I told her my main concern was talking to the president and when her mail box was full I did not think much about the mental health group meeting I was told about, especially considering past experiences.

It turned out the meeting was in a half hour. I asked if I attended the meeting, was late could I speak to the president after about my pressing personal issues. I was told yes and I asked the secretary to please make sure she tells the President that I am coming on the premis of meeting with her for ten minutes so she knows. She said that she would let her know, great I thought now I just need to get there.

I drove an hour and ten minutes to the group meeting and luckily the president was in attendance. She was crass but informative she bounced in and out of the meeting and made announcements each time as to what we should do. She was critical and I spoke she interrupted or spoke over me. I treated her with kid gloves not to spoil my opportunity to speak with her. As I was speaking to the group she said that “I don’t have my haircut for a job interview” when that was not even the topic at hand. It really made me upset. Yet I swallowed it to get the meeting. For the record I have long hair and had long hair in an office for years in a position as high as hers probably making the same amount of money, what an ignorant person she is.

She left abruptly again and soon our group ended and I approached the secretary to get my ten minutes of talk in with the President. Just as luck would have it she came out of her office at that time. I said to her, “ Can I meet with you now to talk in private for ten minutes about some issues I am having?” And she said no and that she was busy. I told her that I drove 70 minutes to get there on the assurance I could speak with her. She said no again and that one of the group volunteers could help me. I said I wanted to talk to her and was told I could do so feeling so upset and lied to I walked out the office before getting into an argument.

This is NAMI. As I look to get by today and the next day I wish I could get back the time they wasted and use it to catch up on self care. I realize that most of these charities are places that are run by checked out deeply bureaucratic yes people who have lost site of their causes. mentally disabled people make sacrifices to trust what these agencies advertise. I wrote this to inform the mental health community the dangers NAMI posed by being disingenuous when it comes to mental health advocacy.

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Tikirob profile image
Tikirob
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13 Replies
Krazie profile image
Krazie

I can agree that NAMI is not as helpful as it would seem it should be, though i have not encountered the problems you have. Then again, i have never tried to speak to the president. Could be that this is a local issue and not widespread. I would hope it's not widespread. Many people rely on NAMI.

Tikirob profile image
Tikirob in reply to Krazie

I followed up with NAMI corporate today who refused to take my number and the forcefully redirected my call to a helpline. I was told by the helpline they will have to figure out who is the point person to deal with my complaint and get back to me. I agree that for many NAMI is probably the difference between having mental illness and no help at all. They asked me to donate each time to become a member but I never heard anything after my first donation. I imagine I will hear success stories in response to my posting and so I am hopeful that this will be more isloated than expressed but for now my sentiments are that NAMI has been more of a diservice than a service to me.

Krazie profile image
Krazie in reply to Tikirob

I am so disappointed in NAMI for not being of more help to you. Perhaps seeking out other help would be more beneficial. I would like to be able to point you in the right direction, but I cannot. I live in a state where very little help is available for much of anything. Just a lot of figurehead offices that claim to help, but have very limited services.

I think many other states have help of more substance.

I tried the 211.org suggested by another poster. It seems that there are slightly different websites per state. MIght be a good idea to check out the website and try to find the one correct website for your state.

Best wishes. Please keep us up to date on your situation. We care very much about what happens to you.

Krazie profile image
Krazie

I hope that you can get your problems worked out. Sounds like a tough situation to be in.

Tikirob profile image
Tikirob in reply to Krazie

Thanks!

Tikirob profile image
Tikirob

I live in USA.

Alliea79 profile image
Alliea79 in reply to Tikirob

If you call 211 they are highly trained and able to get you help in pretty much your entire living needs.

Tikirob profile image
Tikirob in reply to Alliea79

211?

Alliea79 profile image
Alliea79 in reply to Tikirob

Just dial “211” on a phone to connected to help. If it helps, you can get a feel for some of the many things they are able to help with at 211.org

Tikirob profile image
Tikirob in reply to Alliea79

Thanks so much for trying to help.

I dialed 211 and it switched me to 311 in NYC which gives you numbers to call for help. This is how I got NAMIs info I believe. So many of these numbers lead to numbers that lead to...no direct help. My case is easy in my dream world. For 2 years this is what I hoped for in seeking out assistance from all these agencies, a phone call like this:

Me - Hello I need help with my mental health disorder, I can’t get affordable treatment and because of that I lost my apartment, partner and was discriminated at work and lost my job, can you help me?

Mental Health Agency - Sure Rob, we will give you a mental health case worker to work with you until you get back on your feet, he or she will meet you next week and start planning out a pathway for you to get healthy, get work, and get your life back.

That dialogue to me seems so simple in the richest country in the world. A place where I contributed 14 years worth of money to the SS office. Not these grant based places that take contributions and then use the money for???? Who knows.

Tikirob profile image
Tikirob

Yeah sure! What’s the good word?

Tikirob profile image
Tikirob

There were other posts here from another person when I fell asleep last night on getting help but now they are gone?

Tikirob

Many contributors here including me, are living in the UK. Looking across the Pond for services and an understanding of your Social Teams can be very hard. However there are contributors on Site who live in the States and like us here should be able to relate to the system you contribute to.

In the UK Social and Mental Health concerns have well trodden pathways to look for help.

Explaining our system here is not really any use to you, although there is a Pinned Posts above that may have information that will help.

You have complex needs both Mental and Social, Social would include here deal with Social advice including Financial or Social needs, for example advice on getting a new rental etc. It is generally called CAB (Citizens Advice) they help in general terms and will help you find some form of advice.

BOB

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