Heart problems post meningitis?

[vloaiza09]

Has anyone had heart issues after meningitis? I had meningitis/encephalitis and I’m having sharp chest pains that are not going away but all results come back normal... I’m so stumped. I’m pretty sure it’s not acid reflux. Any thoughts would be great!

[Emerald8888]

Hi I had pain in my jaw, upper arms and chest which worried me for months. I had an ecg and all was fine . They just died down after a while. I think it was all a sign of doing too much. If I woke up with the arm pain in the morning I knew what was coming and that it would be mostly a sofa day. If it happened mid day I knew I had to rest a few hours.

[vloaiza09 in reply to Emerald8888]

Thank you. Maybe you’re right.. it’s my body telling me I’m doing too much. Have you gotten recurrent infections since meningitis? That seems to be my issue

[Emerald8888 in reply to vloaiza09]

Yes. I kept being admitted. I felt like I was getting meningitis all over again. Between numbness and dead legs, peripheral neuropathy, aching joints, migraines, neck and back pain, sensitivities to light and sound. Had it all. As times goes by it started to break up and I got longer and longer between the recurrences. It took 2 and half years to really get back to normality. My stamina will never be the same tho.

[vloaiza09 in reply to Emerald8888]

Wow is it sad to hear this as a relief?? Lol I’m only one year post meningitis/encephalitis. I’m sick and tired of feeling sick and tired. Hopefully by another year I’ll be better. Any recurrent lung infections? That seems to be my issue the most. No can explain where it’s coming come from. I also got put on a migraine medication that’s also a mild anti seizure med and wow what a difference it has made in my life! With barely any side effects (knock on wood) it continues that way. I was having constant neck pain and migraines on a daily and i didn’t want to take any meds. But I finally gave in.

[Emerald8888 in reply to vloaiza09]

No lung infections but I was on antiseizure meds too. I started on low dose, it worked instantly but every couple of months the headaches caught up and I would have to up the meds until it was unsafe to to up them any more. I also think these had something to do with my chest pain as well as overdoing things. I decided to gradually wean myself off the meds and I am totally med free. At he higher levels they made me aggressive, massive highs and lows. I was on Toperimate tablets.

[vloaiza09 in reply to Emerald8888]

That’s what I’m on.! Interesting. Unfortunately my chest pain has been there since like day one, it’s the frequency of chest pain changes. Recently it has been when I work out. I was trying to get back being healthy and working out but ido what happened suddenly I’m back to feeling like crap and having these issues and it only gets worse with exertion, I will try to workout less vigorously soon. For the anti seizure med, My goal is to keep it at the lowest dose. I’d rather not up it. If I have to live with some headaches and neck pains every few months that’s fine with me. Better than everyday like before. But I will keep a look out on mood changes.

[Clarkjo in reply to vloaiza09]

My Chinese doctor told me that chest pain was a way for my body to let me know it didnt have the capacity to exercise yet. Best of luck!

[Clarkjo in reply to vloaiza09]

Would you write the medication you are on? I also have lung infection and breathing issues especially when winter comes. I haven't found a solution yet! I would fly to mexico if the sun didnt trigger migraines. Tks

[vloaiza09 in reply to Clarkjo]

Hi!

Ok so i did a stress test! And it came out fine with the exception that my heart goes high extremely fast once i start and that’s not not normal for someone one of my age (30). So my cardiologist just said to start working out slowly and keep it an eye out on how I feel but he wasn’t concerned about any heart issues! Also, I did an endoscopy, and they found food in my stomach even after almost 11 hours still sitting there. So i did another test for something Gastroparesis. And the results came back with “gastric delay emptying”. I’m waiting for the doctor to call me to confirm my diagnosis. But according to my pulmonologist, this makes sense. We’ve been trying to figure out what’s causing my infections for the past year and a half! And my chest pains. It looks like, since my food is not disgusting normally and sitting in my stomach, it’s causing me to have acid reflux and regurgitation (but not like in the normal symptoms, which is why so don’t feel anything) and it gets worse when I TRY TO exercise. And so in turn that acid reflux or regurgitation causes fluid to go into my lungs therefor causing my lung infections! Crazy right? Well I’m hoping this is it! Because im tired of doctors. I’m still getting chest pains but I don’t feel the need to freak out anymore like I used to.

Also, I’m taking topomax, for my migraines and anti seizures that was caused by meningitis/encephalitis. I don’t take any anti reflux meds. I do take Gaviscon to help with acid reflux and it’s amazing stuff and much better for your body then those acid reflux meds. Also take aspirin and Albuterol and symbicort when i need it if i have those asthma attacks (that’s when i know I’m getting a lung infection)

I hope this helps!!

[vloaiza09 in reply to vloaiza09]

Also, I really don’t like medications but if you really suffer from migraines like I do. I used to have them 1-2 a week! Topomax really helped me, i don’t get migraines anymore. But the drug can have bad side effects. Thankfully I got none of it. It is also used to help lose weight and so i also think it’s not helping my diagnosis with the slow gastric emptying. But since i started working out again my appetite has been much better plus protein shakes make up for it. For now i will keep using it until i start feeling like myself or a version of my better self and then probably get off of it. And i use literally the smallest amount. I think 25 mg?