Hi, I thought I would raise awareness about this awful condition. I have had three episodes of viral meningitis and hospitalised due to this condition, each bout has been confirmed with a Lumbar puncture as encephalitis viral meningitis. I have been confirmed as having Mollarets meningitis/encephalitis. I can get sick at any stage and there is no cure, its a very much maligned condition, its is often misdiagnosed and mistreated. I spend two weeks in hospital and every time I get sick, my speech is affected, I've left side weakness and lethargy.
I keep being told "You're lucky its only Viral Meningitis and not bacterial" and I find this very upsetting and annoying as there seems to be a perception that the viral for of the disease is not as bad as the bacterial.
Viral Meningitis is known as the "Silent killer". People think they have the flu and just go to bed with it, sometimes never to wake up again. This is what nearly happened to me the first time I had meningitis and it was a close run thing.
Meningitis is a nasty, life threatening disease no matter what form it presents.
The viral type is too often written off as being "less serious" but its not.
I have permanent disabilities as a result of viral meningitis and find it a real struggle to carry on as normal some days.
I live in fear of getting ill again, and it is a real strain on my life.
The Neurologist who cares for me has told me that there is no cure for Mollarets Meningitis, all that can be done is to try and prevent me from becoming ill again.
I don't want to scare anyone, I just want people to realise that this is a real problem.
My husband is a paramedic and was with me when I became ill, he misdiagnose it, he thought I had the flu as so did I, I not saying that you need to call 999 every time you have a cold or flu like symptom, just be aware.
Thank you for reading .