So glad I found this forum. I got sick August of 2015. Little did I know what exactly would play out. I started with mono and continued to deteriorate which led to diagnosis of vm and 9 day hospitalization. I'm in the medical profession and am in awe of lack of information regarding recovery from vm. I have not returned to work since illness and have "residual effects" . Head pain, prior to this illness I've experienced migraines and what I'm left with I call head pain, starts behind left eye and it is unreal, intolerable pain. I hear migraine and wince as this is beyond that. Photosensitive, nausea and vomiting. And not to be gross but the amount and force of vomiting is quite something in itself still. Memory problems are very frustrating and life as I knew it is on hold. My gp is fabulous and has truly tried to refer me to specialists for consult. Because I am a nontrauma injury and not acute referrals get sent back. I am seeing an osteopath on my own accord of trial and error test. My dura remains inflamed. I tried many meds amitriptyline 75 mg daily , propranolol Hcl 80 mg daily and of course my prn meds ibuprofen, Tylenol, Dramamine. Even before 75 mg dose of amitriptyline I was left with extreme exhaustion. Sleeping is a challenge and to wake feeling rested has not happened since prior to illness. Ct, MRI all clear. I nap frequently throughout day. I was a very active young female, multitasking was my forte. My coping skills and ability to multitask are gone. I'm easily overwhelmed, I avoid crowds, loud noises bright lights. Even dining in busy restaurant with low light can exacerbate my symptoms. So there's probably more I can add but to give you an idea this should do it. I'm looking for suggestions, someone who has experienced same or similar problems. I've seen neurology, and was diagnosed with 2 things, post infectious chronic fatigue syndrome and the other I'd have to look up. Any support, advice would be appreciated.
22 months post vm 35 female: So glad I found... - Meningitis Now
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