Rapid weight loss with TB meningitis - Meningitis Now

Meningitis Now

6,857 members2,117 posts

Rapid weight loss with TB meningitis

PAULAMIL profile image
9 Replies

My boyfriend has been ill in South Afruca with a mystery illness. It has been 'diagnosed' as TB meningitis, more because they are at a loss as to what it is although his first csf showed meningitis. He has had 4 lumbar punctures which should show him improving but they show him getting worse. He has lost 13kg (approx 2stone) in weight in the last 5 weeks. Is this normal. Have others with TB meningitis suffered such weight loss? Before illness ( literally up to the day before) he was at the gym 4 days a week and teaching karate so was very fit with a lot of muscle which seems to have rapidly disappeared. Please let me know your experiences as am going out of my mind with worry.

Written by
PAULAMIL profile image
PAULAMIL
To view profiles and participate in discussions please or .
Read more about...
9 Replies
menin profile image
menin

Hello, sorry to read that, i lost 17 k in 2 weeks, after 4 years i got back just 4 k but i am fine.

PAULAMIL profile image
PAULAMIL in reply tomenin

Wow that really was rapid weight loss. 😧Was yours TB menigitis too?

PAULAMIL profile image
PAULAMIL in reply tomenin

How long did your weight loss go on for?

abracad profile image
abracad

Hi. Really sorry to hear this. I don't know much about TB meningitis. This is a long time for him to be in hospital, such a worry for you. Is SA your home or are you visiting? I can say that I was aslo fairly fit before taking ill and lost 8lbs over first 2 weeks. He will start to put the weight back on as he gets better. What are they giving him to help him, is he eating & drinking even a little bit.

PAULAMIL profile image
PAULAMIL in reply toabracad

Just visiting!! They have given him a tablet called pyroxidine to help with his appetite and I am trying to get him to drink fresubin energy drinks but if he manages 1 a day that is an achievement on top of a very limited amount of food eg handful of blueberries, some watermelon, a few small cubes of chicken. Trying to find that one food that he might fancy and ignite his appetite. Just really wanted to hear if this weight loss is normal as I don't believe they have diagnosed him correctly and they still know there is something wrong with him on top of the meningitis but they are hitting brick walls every time they run a test. They want to do a SPECT scan next so we will see. Thanks for replying - nice to get some feedback from others who have been there. Hope you are fully recovered.

abracad profile image
abracad

Oh gosh if you are visiting, its very difficult to get the support of family & friends which you could really do with. So long as he is eating something & getting fluids. If he feels queasy its really hard for him to eat. I don't know the medication he is on but hopefully its an anti sickness drug. I personally couldnt eat anything milky or creamy for about 3 weeks. To be honest i am still forcing myself to eat as i have very little appetite. It might help to email Meningitis Now for a bit of advice, they may have some pointers. A bit difficult as different countries have different ways of working. Have you tried googling the current symptoms? You may spot something they havent looked for. Most importantly make sure the medical team know EVERYTHING possible about his family medical history or anything slightly unusual before he fell ill. Best of luck to you both.

PAULAMIL profile image
PAULAMIL in reply toabracad

Many thanks for your reply, how long ago did you have meningitis?

ValeriaGuzman profile image
ValeriaGuzman

Hi, my cousin was diagnosed with TB meningitis two months ago. She lost about 15 Kg in only two weeks. Now she is getting better. Based on my experience taking care of my relative, I want to give you an advice about feeding your boyfriend. It is extremely important for him to take the appropriate food and liquids, my cousin barely ate because of the nausea and that had terrible consequences, with TB infecting other organs such as kidney and lung. When she started to be feed via a nasogastric tube, she gradually and slowly has been getting better.

nanthakumarrr profile image
nanthakumarrr

I had tb meningitis and my weight was reduced from 60 to 40 in less than 2 weeks abd now gained somewhat to 50 kg

Not what you're looking for?

You may also like...

How long does it take to respond to TB meds with TB meningitis?

My brother in law is in the hospital with TB meningitis. He was admitted 5 weeks ago with...
ABenjamin profile image

Side effects of TB meningitis?

Hi all, I would like to hear your experience on TB meningitis... My dad has been diagnosed with TB...
CCKL profile image

TB Meningitis

Hi am a mother whose son is currently fighting for his life, he has been in a coma for two weeks...
Fanice profile image

TB Meningitis

My dearest sister who is 33 years old, was diagnosed with Tb meningitis in May 2017, she never...

TB Meningitis Son

I am the dad of my son who is now in the hospital. He is very sick of Tb Meningitis and what i have...
Frank15 profile image

Moderation team

See all
MNVickyP profile image
MNVickyPAdministrator
H_SECOrange profile image
H_SECOrangeAdministrator
JNHCA profile image
JNHCAModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.