I'm 5 weeks into viral meningitis recovery, (not feeling much improvement yet, just baby steps). My legs get very painful and heavy feeling if I stand up for more than 30 seconds, and they feel shaky and give way if I walk so I'm in a wheelchair or use a walking aid... and it's the same with my arms if I try to do anything strenuous like opening bottle tops or lifting something or playing piano my hands shake and muscles hurt. I also get pain in my shoulder and knee and elbow joints and still get a LOT of neck pain. I take 10mg dose of Amitriptyline after diagnosing me with post-concussion syndrome along with co-codamol and diclofenac for pain. I get very dizzy on standing and the more tired I am the worse that is, I find too much noise and visual stimulation exhausts me most.
My post is to ask if anyone else has had episodes where their body just kind of shuts down? I have had a few of these now and it's really scary. It begins with a weird feeling like dread in my stomach, I feel strange, like I know something isn't right, my head gets fuzzy, so I usually sit or lay down, then I will flop and feel like my body has gone to sleep.. I can't open my eyes, lift my hands, speak or anything... but it's scary because it's not like fainting, because I am still completely aware of what's around me and can still hear, I hear my husband asking me to wake up but I can't make my body move. I even dribbled the other night and could feel it down my cheek but I couldn't move. My breathing gets very heavy and can be slow then fast and after a few minutes I can speak again and open my eyes but it's hard to focus my eyes sometimes. Movements are then VERY slow and it takes all my effort. my speech feels funny after like I get my words mumbled and jumbled a little. also afterwards, my head on the right side at the back is really painful and tingly and just feels so weird.
Please help if you have had anything similar? Thanks for reading, Megan xx