Hi, It's my first time on this forum! Steve from meningitis support gave me the details and I'm looking for help / advice / people with same issues as mine previously or dealing with it?
I contracted viral meningitis in Jan 2015! I felt funny on the Sunday and on Monday woke with a immense headache which got worse then the dizziness and photosensitivity came and I some how managed to waddle to boots for advice on my lunch hour - they thought it was a migrane but then I collapsed - basically my body went really heavy and I couldn't stand or open my eyes or move, they called for an ambulance and I was taken in and by that point I had a neck ache too! I was finally given a lumbar puncture 2 days later and was initially treated for bacterial meningitis then they realised it was viral and I was released! It took me 4 months before I went back to work and then on a phased return - the first Saturday I had to do and actually see customers ( I work in a bank) I was serving a customer and the shooting pains started and then dizziness and photosensitivity and then my whole body went weak again, could only just whisper, couldn't open my eyes and I couldn't move so off to hospital I went again and stayed over night they said it was aftermath of VM and that I had done too much! I went to a private neurologist a couple of days later and was given another lumbar picture which showed VM had gone and she put me on pregabalim. I had 2 CT scans over this time and both ok! I finally went back to work end of July on phased return and been Doing that since then and although ive had extreme fatigue and some shooting pain headaches I've been working through it and getting stronger day by day! This was until last week, I completed my first week on full 9-5hrs and I got to Thursday and i was fully back in to full stressful work and I got a headache and then the shooting pains started now and then then the photosensitivity - why I didn't stop and have a break - there was no one to take over we were short staffed and it was lunchtime! So I powered on and then a customer came in and I couldn't read his paperwork and I started to cry and I went into another room then I got the dizziness then the collapse!! I fell of the chair at work on to the floor and stayed that way until the ambulance got there! I couldn't breathe as my hair (long and thick) was covering my face. I was taken to hospital and released 7+hours later when I could walk again! Again the left hand side of my body took longer to come back! I couldn't speak for an hour and I couldn't move my arms for at least 3hrs as they kept dropping off my chest and i couldn't left them back up it took 7hrs for all feeling to come back and Hospital has no idea why this has happened and think it's related to me doing too much and the viral meningitis! Steve has said he has heard of others having "echos" like this has Anyone else experienced these collapses and weaknesses?? I could really do with some help! I'm so scared when the next one will come on! I'm back to being so fatigued I can hardly do anything and I'm not back at work yet but planning to next week! If I do too much the dizziness and shooting pains come on? Anything any one can help with? GPs are usuall they keep shrugging shoulders saying they don't know what's wrong! Thanks in advance !