I have probably had elements of ME/CFS for years. A GP first suggested it 3 years ago but as I have a lung condition which makes me prone to lung infections ( Bronchiectasis), it got confused with that. Anyway got final diagnosis of ME in November. Read so much about it but what a learning curve!!
I know having ME/CFS makes you very prone to “ boom and bust” by wondered if anyone gets this. When I feel I have some energy and abit like my old self and happy, albeit temporary, I feel shaky. Almost like the feeling of happiness is a causing chemical changes, not nice but weird. I don’t know but maybe my body is just on alert for happy behaviour?”
Sounds abit vague but maybe someone has experienced it?