Humira to treat myopic cnv

[youngcnv]

I just visited with a uveitis specialist, and she recommended Humira (a non-steroid treatment for inflammation and potential autoimmune disease) as treatment for recurring bleeds due to myopic CNV. Has anyone tried and succeeded with this course of treatment?

[Jachodges]

Yes, my daughter started on humira when she was about 17 and it has kept her stable since, she’s now 20. She hasn’t had any side effects from it. Hope that helps xx

[youngcnv in reply to Jachodges]

Thank you for sharing. Your daughter's experience gives me hope. Does your daughter have myopic cnv? Did the Humira suppress her immune system? How long will she need to remain on it? Is she under the care of a uveitis specialist?

[Jachodges in reply to youngcnv]

Hey! She has PIC; Punctate Inner Choroidopathy which involved CNV which she had eye injections for and steroids etc to start with. Since being on Humira things have settled. She will be on it indefinitely as far as we are aware. She is under the care of a uveitis specialist and is seen every few months. Yes it does suppress the immune system and she is also on another form of immunosuppressants as well.

Hope that helps x

[youngcnv in reply to Jachodges]

What is the process to get the PIC diagnosis? Does she take any vitamins or anything to counter the immuno-suppressants?

[Jachodges in reply to youngcnv]

She actually was seen by the hospital who diagnosed PIC and then referred her into a specialist at another hospital. Yes she takes lots of vitamins. She does still pick things up quite easily but eyes have been stable since being on the medication.

[BanksRipken]

I was diagnosed with myopic macular degeneration with cnv about 25 years ago. I had PDT and countless injections. Over a year ago, I started on Humira and now the biosimilar version since insurance stopped covering it. It's been over a year since I've had an injection and I was at retina this week and she said it looks really good. I went from appointments/injections every four weeks to the next retina appointment six months out. Uveitis and retina collaborate on my eyes . . .

[youngcnv in reply to BanksRipken]

Wow! I'm so happy for you that your situation has improved after all these years. You have given me great hope!

[BanksRipken in reply to youngcnv]

Yes, I had inflammation and then possible PIC. I'm not sure anyone knows why it is working but apparently it is. And yes, I am followed by retina, uveitis, and glaucoma.